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Supported by the European Commission, grant agreement SPC.2002418

EUROSUPPORT IV Final Data Workshop November 19-20, 2004. Institute of Tropical Medicine, Antwerp Welcome to the meeting !. Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

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Supported by the European Commission, grant agreement SPC.2002418

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  1. EUROSUPPORT IV Final Data Workshop November 19-20, 2004 Institute of Tropical Medicine, Antwerp Welcome to the meeting! Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  2. EUROSUPPORT IV Final Data Workshop Objectives of this meeting — To present an overview of the survey results — To present an overview of results of the self-reported questionnaire data — To discuss policy recommendations based on the quantitative results (in working groups) — To give an outlook on ES V Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  3. ES IV Data Workshop November 19, 2004 ES IV Survey Objectives of the survey: — To assess the number of caregivers living with HIV in consecutive samples of selected HIV treatment centres — To assess the number of children affected by HIV in these samples — To compare persons living with HIV with and without children with respect to some basic patient characteristics Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  4. ES IV Data Workshop November 19, 2004 ES IV Survey - Methods — Based on the results of the Flemish pilot study (AIDS Care July 2004; 16(5):641-48) a short survey form was developed and given to each consecutive patient — Forms were filled in by physicians and/or study nurses — Duration of data assessment period differed: September 2003 — June 2004 (app. 10 months) depending on the various centres Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  5. ES IV Data Workshop November 19, 2004 ES IV Survey - Results — 8 HIV treatment centres participated — An overall number of about 3.700 patients were asked whether or not they had children under the age of 18 (screening question) Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  6. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  7. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  8. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  9. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  10. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  11. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  12. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  13. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  14. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  15. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  16. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  17. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  18. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  19. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  20. ES IV Data Workshop November 19, 2004 ES IV Survey - Results Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  21. ES IV Data Workshop November 19, 2004 ES IV Survey - Conclusions (1) Less than a third of all patients has care-giving responsibilities for children younger than 18. Caregivers and patients without children differed with respect to — age (caregivers were younger) — gender (more women among caregivers) — origin (more migrants among caregivers) — HIV transmission route (more likely to have acquired HIV through unprotected heterosexual contact) — about a third of all caregivers is single parent — migrant caregivers have more children than European caregivers Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

  22. ES IV Data Workshop November 19, 2004 ES IV Survey - Conclusions (2) — Results cannot be transferred as such (representative samples?) to the general population of PLWH — Recent epidemiological trends in Europe have indicated an increase of heterosexual transmissions and of women infected — “Normalization of HIV” implies that an increasing number of families are affected — Yet, in care and counselling, the family context tends to be overlooked — Questionnaire data reveals more in-depth the psychosocial problems and needs of families living with HIV Supported by the European Commission, grant agreement SPC.2002418 "The Commission is not liable for any use of information provided in this presentation".

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