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Myasthenia gravis

SUMMER WITH MYASTHENIA GRAVISu200b

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Myasthenia gravis

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  1. HOW TO SURVIVE SUMMER WITH MYASTHENIA GRAVIS By Kim Anderson

  2. KEEP IT COOL • The first line of defense is to stay cool. It may be easier said than done. Running the AC nonstop can be pricey but there are some other alternatives that are worth exploring. As heat rises, I will probably start spending more time in my basement because it’s the coolest part of my house. Having energy efficient windows help keep temperature regulated between indoors and outdoors. Also black out curtains are a good defense in blocking the external temps.  • Staying cool doesn’t just mean externally. Ingesting cooler items will also be apart of the survival plan. In general I’m a biggest fan of cold cuts but eating cold meals like sandwiches can be helpful and who doesn’t love a nice frozen treat (did someone say Blizzards from dairy queen?)

  3. STAY INSIDE • As the sun and summer are my C, I’ve found that staying inside is key to surviving summer with myasthenia gravis. Find yourself a good indoor hobby. I love to work on the computer. Those are things I can do while sitting down and remaining cool.  You will find a way to get creative and beat boredom. And if all else fails, a binge watching session courtesy of Netflix, can keep you busy for a few days if not weeks. 

  4. SUNSET OUTDOOR FESTIVITIES • If I must go outside this summer, 8/10 times it will be after 7pm. I will wait until the sun is starting to go down before I leave out. This includes all functions from cookouts to amusement parks. I’ve been implementing this tactic for the past few years so most of my friends and family are used to it and don’t expect to see me during peak sun hours. It’s a giant joke that I’m allergic to the sun and heat. They can joke as much as they want. Just know know if the event is outside.  • A note on outdoor activities, FOMO (fear of missing out) is real and so is the guilt for not being able to participate in certain things with your friends and family. 

  5. DRESS CODE • As far as summer with MG I’ll be following the wear less to go out more rule. Basically loosely, flowy, lightweight and light colored garments will be a staple for me. This aligns well with my desire to be more boho chic style anyway 

  6. For more information go to • https://www.facebook.com/Myasthenia-Gravis-information-from-sault-ste-marie-1826880070950935/?ref=pages_you_manage

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