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Self Management for Life: My Condition, My Life NHS Annual Conference August 2011

Self Management for Life: My Condition, My Life NHS Annual Conference August 2011. LTCAS and Self Management. Jen McCole Grants Development Officer. Overview. LTCAS Self Management Fund Self Management good practice examples LTCAS new developments. What is LTCAS?.

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Self Management for Life: My Condition, My Life NHS Annual Conference August 2011

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  1. Self Management for Life: My Condition, My LifeNHS Annual ConferenceAugust 2011

  2. LTCAS and Self Management Jen McCole Grants Development Officer

  3. Overview • LTCAS • Self Management Fund • Self Management good practice examples • LTCAS new developments

  4. What is LTCAS? • Umbrella body for third sector organisations supporting those living with an LTC • 40% of population live with one or more LTC

  5. LTCAS: What do we do? “Our vision is for a Scotland where people with long term conditions enjoy, not endure, full and positive lives, free from discrimination and supported by access to high quality services, information and support.”

  6. LTCAS: What do we do? • Represent views of members. • Strategic partner of Scottish Government. • Support and strengthen organisations that support people living with LTCs. • Manage the Self Management Fund for Scotland.

  7. What is Self Management? • Specific to the individual • Person centred approach leading to empowerment - person has control over life and condition management • Not about “going it alone” • Recognises that the medical aspects only forms part of life with a condition.

  8. Self Management Fund • Support ‘Good Practice’ • Support existing work • Develop new ways of working

  9. Self Management Fund • 81 Projects • £4 million • Conditions • Approaches • Resources

  10. Parkinson’s UK • Support and research. • Lived Experiences become inspiration for funding. • Joint Working • Outcomes

  11. ‘‘In the 25 years since Mel was diagnosed, I could count on one hand the nights I’d had a good’ sleep’’- Jean Ballantyne ‘I have learnt so much about the effects of lack of good sleep for people living with Parkinson’s and their families- it was invaluable to be there from the start’ – Consultant

  12. Evaluation • Evaluation to demonstrate: -Value of cross sector partnerships -Improved outcomes for statutory and voluntary sector and those living with LTCs. • Final evaluation • Special reports

  13. Awareness Raising • My Condition, My Terms, My Life, educating the public about Self management • Current work: professionals

  14. www.myconditionmylife.org

  15. LTCAS: Current Work • Development Fund and new SM Fund • Life Changes Fund • SMC project • LTCAS events: Health and social care conference, Self Management Week • Policy and Campaigns

  16. jen.mccole@ltcas.org.uk www.ltcas.org.uk

  17. Reshaping Care for Older PeopleCommunity Capacity Building& Co-production

  18. Community Capacity Building (CCB) • Community capacity building is one of the twin pillars of community development, the other pillar being community engagement. Community capacity building involves activities, resources and support that strengthen the skills, abilities and confidence of people and community groups to take effective action and leading roles in the development of communities. Adapted from Scottish Community Development Centre

  19. Coproduction (CP) • “Delivering public services in an equal and reciprocal relationship between professionals, people using services, their families and their neighbours. Where activities are co-produced in this way, both services and neighbourhoods become far more effective agents of change.” National Endowment for Science, Technology & the Arts (NESTA) & New Economics Foundation (NEF)

  20. Reshaping Care for Older People ‘Change Fund’ • £70 million 2011/2012– expected circa £300 million over 4 years • Bridging finance to lever improvement across the entirety of older people’s spend in health and social care across 32 health and social care partnerships • Partnership planning process – Health, Local Government and now Third and Independent sectors too • A Programme for Change – 10 year Delivery Plan www.scotland.gov.uk/Topics/Health/care/reshaping/programmeforchange • Delivery Plan Volume 2 – funding and demographic projections for future years, Autumn 2011 • 2011/12 development of Joint Commissioning Strategies (to 2020)

  21. Existing example: SHINE in Fife • “The project will intentionally design a micro-market for highly tailored care packages for frail and vulnerable older people in their communities provided by independent micro-enterprises.  It will provide “proof of concept” to convince staff that radically different models of community care can work.”

  22. Existing example: Perth & Kinross Healthy Communities Collaborative • “The Healthy Communities Collaborative is such a good idea. A small number of professionals working in partnership with unlimited numbers of volunteers, so that older people can stay fitter and healthier for longer, has to be good”

  23. Contact Details • Andrew Jackson • andrew.jackson@scotland.gsi.gov.uk • 0131 244 5424 • Gerry Power • gerry.power@scotland.gsi.gov.uk • 0131 244 2374 • www.jitscotland.org.uk/action-areas/reshaping-care-for-older-people/community-capacity-building

  24. Information to support self management NHS Inform– quality assured health information ALISS– local resources, citizens informing and supporting each other. Promote mutuality by encouraging self supporting communities

  25. Next steps • ALISS technical model tested and working • Future management with LTCAS • Build on synergies with others: • Information Partnership • Macmillan • NESTA, IRISS, Local Libraries, NHS Inform • Local and national assets already being added to ALISS Engine • GG&C eHealth project to develop tools

  26. Deep End Reports “ additional services could be made known to patients…., if primary care staff were better informed about what is available locally.” Key intervention: An internet directory of community resources: if user friendly, locally relevant and kept up to date. http://www.rcgp.org.uk/college_locations/rcgp_scotland/initiatives/health_inequalities.aspx

  27. Links ProjectConnecting primary care and communities

  28. Aims of Links Project • Learn how pc teams find, understand and use local resources • Is there a need to improve connections between pc and local communities? • Are pc teams interested in accessing local support if available? • Identify processes - training/time/skills required • Report on key learning points • Link with ALISS

  29. Method • Short time scale – 5 months to test idea • 6 primary care practices in Glasgow – all in deprived areas • 4 from Fife – mix of populations • Data collection supported by LTCC • Clinical lead for each group 38

  30. Early findings • Enthusiasm and interest • Surprise at amount of community support, formal and informal • Face to face connections, personal relationships important • Role for ALISS obvious – staff need easy, quick way to find local support, eg during consultation

  31. ALISSFurther information web: http://www.aliss.org twitter: @ALISSproject

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