IT Update November 12, 2015

1. IT UpdateNovember 12, 2015

2. Agenda • Opening Remarks James Gleason • IT Update Alex Tulchinsky

3. IT Advisory Committee (ITAC) Background • Formed in 2012 under Bob Merion’s leadership • Committee charter • “Assist the UNOS CAC in fulfilling its oversight duties for UNOS operations by providing external expertise regarding information technology efforts…”specifically . . . • Assists the CAC to develop a strategic plan for Information Technology (IT) needs of the corporation and oversees the execution of the IT plan • Identifies strategic priorities in IT, and assists the CAC in setting standards for organizational IT performance • Oversees the work of the corporation in fulfilling the IT-related requirements of the OPTN contract.

4. ITAC 2014/15 Composition ITAC members from UNOS board (3 voting members, serving 2 years): ITAC Chair:

5. ITAC 2014/15 Composition (cont’d) • ITAC advisors from the IT community (3 non-voting members, serving 2 years): • Haris F. Basit • Arthur (Art) L. Glasgow • Rick Hasz • ITAC UNOS staff and board leadership :

6. ITAC Past Accomplishments • Performed an assessment of UNOS IT organization & leadership • Performed an assessment of current and future IT workload • Reviewed past and planned IT delivery performance • Recommended leadership and organizational improvements • Recommended significant UNOS IT staff increase/development • Recommended IT process improvements • Oversee the implementation of board approved IT actions supporting those recommendations • Provided direct access and consultation with user community

7. ITAC 2014/15 Goals • Oversee the implementation of board approved IT actions and supporting recommendations to include . . . • Continued recruitment to full staff • Oversee continued IT organizational and process improvements • Monitor system development and service delivery per schedules • Insure continued leadership and financial support for IT effort across fiscal calendars • Provide client and expert guidance for IT futures • Insure service is anchored in client need and satisfaction • Continued IT translation services to the CAC and UNOS board (i.e. make IT communications user understandable)

8. Projects Customers Technology Data Culture IT Update

9. June 2014 – November 2014 a a a a a

10. 2015 Projects Timeline

11. HOPE Act Impacts Patient Safety Membership DonorNet Match TransNet Waitlist TIEDI KPD

12. Historical Perspective

13. 2013 – End of Year 21 – Pipeline 39,010 hours 2 – In Progress 7650 hours 20,000 2013 – In Progress Kidney Waiting Time Modifications Update the Calculated PRA (CPRA) 18,000 7650 (2) 16,000 14,000 IT Effort Estimate in Hours 10,940 (4) 12,000 10,530 (5) 9090 (4) 10,000 8000 6210 (5) 6000 4000 2240 (3) 3Y [2010] < 1Y [2013] 1Y [2012] 2Y [2011] 4Y [2009] 5Y [2008] 0 2000 Age [year of BOD approval]

14. 2014 – End of Year Projection 7 Delivered 22,740 hours 24 – Pipeline 24,620 hours 5 – In Progress 16,560 hours 20,000 300 (1) 18,000 2014 – Completed Kidney Waiting Time Update CPRA Reorganize hemodynamic data on Heart Justification form Modify Requirements for Mandatory HTLV-I/II Patient Safety Reporting PA/KP Allocation KAS – coming December 4th 2014 – In Progress Ped Lung Diagnosis – Other Specify TIEDI OMB Revise LAS Potential Donor Derived Disease Transmission reporting Living Liver Donor Follow-up 16,000 16,690 (12) 14,000 IT Effort Estimate in Hours 12,000 5940 (1) 10,000 7350 (1) 8000 6000 290 (1) 3150 (3) 4000 1430 (1) 2240 (3) 1540 (1) 3Y [2011] < 1Y [2014] 1Y [2013] 2Y [2012] 4Y [2010] 5Y [2009] 800 (3) 1180 (2) 0 2000 Age [year of BOD approval]

15. 2015 – End of Year Projection 21 Delivered 35,880 hours 6 + ? – Pipeline 7560 hours + ? 3 – In Progress 1740 hours 20,000 2015 – Completed Ped Lung Diagnosis Other Specify Reinstate No Appeal/No Withdraw Donor Screening using Qualified Specimens (#1) TIEDI OMB Require HLA C and HLA DQB Patient Safety System - Living Donor Clarify A2/A2B Ped Liver Remove ICU Ped Liver Hepatablastoma Revise LAS Consent to Authorization 18,000 2015 – In Progress Donation after Circulatory Death Cap HCC @ 34 Delay HCC Vessel Disposition Reporting (#4) Potential Donor-Derived Disease Transmission Reporting (#3) Imminent and Eligible Death HLA Equivalency Tables (#2) Minimum Screening for Deceased Donors Add Serum Sodium to MELD Comprehensive Histo Compatibility Rewrite Living Liver Donor Follow-up 2013 PHS Guideline Review HOPEAct- June 2015? 16,000 14,000 IT Effort Estimate in Hours 12,000 1620 (2) 10,000 7560 (6) ? 8000 6000 120 (1) 4000 3Y [2012] < 1Y [2015] 1Y [2014] 2Y [2013] 4Y [2011] 5Y [2010] 0 2000 Age [year of BOD approval]

16. 2015 – End of Year Projection 2 year total projects delivered 28 58,620 hours (including HOPE Act) 6 + ? – Pipeline 7560 hours + ? 3 – In Progress 1740 hours 20,000 18,000 16,000 14,000 IT Effort Estimate in Hours 12,000 1620 (2) 10,000 ? 7560 (6) 8000 6000 120 (1) 4000 3Y [2012] < 1Y [2015] 1Y [2014] 2Y [2013] 4Y [2011] 5Y [2010] 0 2000 Age [year of BOD approval]

17. Customers

18. Technology

19. Current State User Interface & Application Layer Request Small Changes … Become Big Efforts… Business Logic & Data Layer

20. Target State Request Modular Services operating independently of one another User Interface Front End Front End Front End Small changes have limited impact Algorithm layer Business Logic Business Logic Business Logic Business Logic Data layer Database Database Database

21. Information Security Update

22. Disaster Recovery & Business Continuity

23. Data Exchange Store Analyze Format Organize Automate Collect Information Architecture

24. Culture

25. Thank You! Questions?