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Campaigning for Autism services: Reflections on the past, dreams for the future

Campaigning for Autism services: Reflections on the past, dreams for the future. Virginia Bovell 12.1.2012. Danny then …. The first 5-6 years . Thoughts about the first 5-6 years. 1. The difference between access and influence, activity and impact. Emerging awareness of discourse around

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Campaigning for Autism services: Reflections on the past, dreams for the future

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  1. Campaigning for Autism services: Reflections on the past, dreams for the future Virginia Bovell 12.1.2012

  2. Danny then …

  3. The first 5-6 years

  4. Thoughts about the first 5-6 years 1. The difference between access and influence, activity and impact

  5. Emerging awareness of discourse around • ABA • neuro-diversity

  6. 3. The nature of evidence and how it does – or does not – affect decision-making, choices and opinions

  7. The next 5-6 years

  8. Danny meets CescFabregas and William Gallas

  9. Arsene Wenger!

  10. Recent years

  11. And now

  12. Dreams for the future 1. Access to relevant and appropriate support will be available to all, without struggle, and across the lifespan 2. Developments in autism research and practice will be informed and led by a partnership of stakeholders, professionals and researchers 3. There will be no more football!

  13. ???

  14. Fulfilling the dream • acknowledge our prejudices and biases • commit to finding out more about other perspectives • welcome constructive criticism • recognize how little we know at present • affirm autism as a condition that is here to stay • keep dedication to improving lives, and an understanding of the real issues facing people, centre-stage

  15. MRC review of autism research: epidemiology and causes (2001) • Autistic spectrum disorders: Good Practice GuidanceDfES (2002) • APPGA Manifesto (2003) www.appga.org.uk/resources/manifesto-progress-report.aspx • Mapping Autism Research: identifying UK priorities for the future Tony Charman, Pippa Clare (2004) NAS • Dawson, Michelle (2004) Autism and ostracism in Paul Martin’s Canada: not the usual autism letter, Good Autism Practice Journal, 5, 2, 68-70 • Constructive Campaigning for autism services: the PACE Parents HandbookArmorerWason (2005) Jessica Kingsley publishers • Fulfilling and rewarding lives: the strategy for adults with autism in England (2010) Department of Health • Finished at School Campaign and Report: • www.ambitiousaboutautism.org.uk/page/what_we_do/campaignin_change/finishedatschool.cfm • UK ABA Autism Education Competence Framework: • www.ambitiousaboutautism.org.uk/page/what_we_do/research/aba_competencies.cfm • Bridging Autism, Science and Society: Moving Toward an Ethically Informed Approach to Autism Research Pellicano & StearsAutism Research 4: 1-12, (2011)

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