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Council of Europe Report of the Committee of Experts on the Organisation of Palliative Care

Council of Europe Report of the Committee of Experts on the Organisation of Palliative Care. Adopted by the Committee of Ministers June, 2003 Dr. Tony O’Brien, Chairperson. Council of Europe. Right to health care aimed at achieving highest possible sense of well-being;

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Council of Europe Report of the Committee of Experts on the Organisation of Palliative Care

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  1. Council of EuropeReport of the Committee of Expertson theOrganisation of Palliative Care Adopted by the Committee of Ministers June, 2003 Dr. Tony O’Brien, Chairperson

  2. Council of Europe • Right to health care aimed at achieving highest possible sense of well-being; • Growing need for palliative care; • Differences in availability and quality of palliative care throughout Europe; • Goal of palliative care is best possible quality of life ---

  3. Dr. H. Retschitzegger (Aus) Mr. F. Mabrouk (Bel) Dr. Zdenek Bystricky (Cze) Dr. K. Holli (Fin) Dr. K. Hegedus (Hun) Dr. T. O’Brien (Irl) Chair Mrs. D. Da Col (Italy) Dr. A. Diniz (Port) Mrs. M. Murg (Rom) Mrs. M. Godova (Slov) Dr. X. Gomez – Batiste (Sp) Mrs S. Sauter (Swe) Dr. C. J. Furst (Swe) Dr. C. Mazzocato (Swit) Mr. M. Wright (U.K.) Prof. D. Clark (U.K.) Dr. K. Bernard (WHO) Fr. A. Brusco (Holy See) Mr. M. Chausson (EAPC) Dr. D. Willems (Nl) – Cons. Participants Dr. Piotr Mierzewski, COE Secretariat

  4. Recommendations Appendix Explanatory Memorandum Glossary & References

  5. Key recommendation 1 Adopt policies, legislative and other measures necessary for a coherent and comprehensive national policy framework for palliative care.

  6. Key recommendation 2 Take to this end, whenever feasible, the measures presented in the appendix to the recommendation, taking account of their respective national circumstances.

  7. Key recommendation 3 Promote international networking between organisations, research institutions and other agencies that are active in the palliative care field.

  8. Key recommendations 4 Support an active, targeted dissemination of these recommendations and its explanatory memorandum

  9. 1. Palliative Care … .. is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. W.H.O. 2002

  10. 2. Palliative care principles • Vital and integral part of health services • Access care in a place, and at a time that is consistent with individual’s needs and wishes • Quality of life • Whole person care • Interdisciplinary teamwork • All therapeutic options, as appropriate

  11. 2. Palliative care principles • Access based on need • Education for all health care personnel • Research focusing on quality of life • Adequate and equitable level of funding • Ethical issues in palliative care

  12. 3. Settings and services • Integrated programme in all care settings • Interdisciplinary and multiprofessional • Support for family carers • Respite care • Financial issues • Leadership / coordination of care

  13. 4. Policy and organisation • Integral part of health care system • Needs assessment studies • Palliative care strategies • Identify and address barriers to good palliative care • Opioid availability – legislation? • Equity in access? • Data collection

  14. 5. Quality improvement and research • Quality measures (multidimensional) • Clinical practice guidelines • Audit programmes • Qualitative and quantitative research • Collaborative research • Observatory – to collect, process and disseminate information.

  15. 6. Education and training • Academic posts • Undergraduate curriculum for all health care professionals • Specific post graduate programmes • International cooperation • Multidisciplinary learning • General public • Challenge negative attitudes, e.g. opioids

  16. 7. Family issues • Addressing family needs • Family is unit of care • All those significant in the life of the patient • Emotional support • Practical support

  17. 8. Communication • Essential aspect of health care provision • Encourage honesty and openness • Respect patient’s wishes • Cultural influences • Special needs groups e.g. children • Not simply information exchange!

  18. 8. Communication • Communication skills training • Hospital / hospice design issues • Dedicated time for family meetings • Access to modern IT facilities • Case conferences

  19. 9. Teamwork • Interdisciplinary, multiprofessional • Decision making? • Volunteers • Building and maintaining teams • Information exchange • Communication • Individual & Team support mechanisms

  20. 10. Bereavement • Loss is a universal human experience • Bereavement care begins at the moment of first contact with patient / family • Not an illness, do not medicalise response • Levels of bereavement support • ? Role of volunteers in bereavement support

  21. Council of Europe Report Adopted by the European Health Committee in June 2003.

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