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GEMSS Action Group Leadership 2016

GEMSS Action Group Leadership 2016. Project Scope at Start. Revised Scope. Familiarize & Share. Familiarize & Share: Assessment. Language Content Links Data. A page-by-page review of all conditions was needed. Familiarize & Share: Results. Reviewed Existing Content. 36. 39. 26.

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GEMSS Action Group Leadership 2016

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  1. GEMSS Action Group Leadership 2016

  2. Project Scope at Start

  3. Revised Scope • Familiarize & Share

  4. Familiarize & Share: Assessment Language Content Links Data A page-by-page review of all conditions was needed

  5. Familiarize & Share: Results • Reviewed Existing Content 36 39 26 Conditions Web Links Reviews • Added New Content • Disclaimer | Neuromuscular Disorders | Autism Spectrum Disorder • IFSP/IEP/504 • Made Recommendations

  6. Familiarize & Share: New Content

  7. Familiarize & Share: New Content

  8. Familiarize & Share: New Content Source: progenity.com

  9. Familiarize & Share: Results • Shared on Rare Disease Day: February 29, 2016 • Early Intervention providers | Leadership community | Condition specific Facebook groups, Preschool contacts through NH Department of Education, Individual providers • In the week following our outreach efforts there were: • 213 new visitors to GEMSS on Rare Disease Day • 19 new GEMSS Facebook likes • 983 new visitors to GEMSS

  10. Recommendations • Improve & maintain quality of information • Focus & expand educational materials • Continue to strengthen & streamline medically related content • Offer easily accessible templates & fact sheets addressing a broad range of issues • Define & Expand Transitions

  11. Collaborate Action Group members IOD Director – Ann Dillon Project Coordinator, NEGC – Karen Smith NH LEND – Erika Baril Coworkers, friends, relatives, PSU student

  12. Video

  13. Present • Presenting at:

  14. Questions?

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