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This project involved reviewing and updating existing content for various conditions, adding new content, and sharing results to improve information quality and outreach efforts. Recommendations focused on educational materials, medically related content, templates, and transitions. Collaboration among group members was key.
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Revised Scope • Familiarize & Share
Familiarize & Share: Assessment Language Content Links Data A page-by-page review of all conditions was needed
Familiarize & Share: Results • Reviewed Existing Content 36 39 26 Conditions Web Links Reviews • Added New Content • Disclaimer | Neuromuscular Disorders | Autism Spectrum Disorder • IFSP/IEP/504 • Made Recommendations
Familiarize & Share: New Content Source: progenity.com
Familiarize & Share: Results • Shared on Rare Disease Day: February 29, 2016 • Early Intervention providers | Leadership community | Condition specific Facebook groups, Preschool contacts through NH Department of Education, Individual providers • In the week following our outreach efforts there were: • 213 new visitors to GEMSS on Rare Disease Day • 19 new GEMSS Facebook likes • 983 new visitors to GEMSS
Recommendations • Improve & maintain quality of information • Focus & expand educational materials • Continue to strengthen & streamline medically related content • Offer easily accessible templates & fact sheets addressing a broad range of issues • Define & Expand Transitions
Collaborate Action Group members IOD Director – Ann Dillon Project Coordinator, NEGC – Karen Smith NH LEND – Erika Baril Coworkers, friends, relatives, PSU student
Present • Presenting at: