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Community Research Advisors Group to the Tuberculosis Trials Consortium

Community Research Advisors Group to the Tuberculosis Trials Consortium. May 16, 2013 Atlanta, GA Francis A, CRAG member, Site 39 Mike Frick, CRAG coordinator; Treatment Action Group. Membership Update. *CRAG co-chair. CRAG Working Group Participation.

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Community Research Advisors Group to the Tuberculosis Trials Consortium

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  1. Community Research Advisors Groupto theTuberculosis Trials Consortium May 16, 2013 Atlanta, GA Francis A, CRAG member, Site 39 Mike Frick, CRAG coordinator; Treatment Action Group

  2. Membership Update *CRAG co-chair

  3. CRAG Working Group Participation • CRAG members continue to participate in many working groups and protocol development teams: • Other working groups should contact CRAG at key milestones in process for feedback • AER • CSG • IQC • LTBI • MDR • PIG • P&P • Ph II • Ph III • Biomarkers • Steering Committee

  4. CRAG Member Achievements since October 2012 • 2 new Community Advisory Boards (CABs) formed • Uganda • Peru • Co-authored Lancet Infectious Diseases publication on community engagement in TB research • “Engaging communities in TB Research,”Lancet ID (2013) • World TB Day activities and advocacy • South Texas World TB Day walk / run • Congressional meetings in Washington, D.C. • Awareness raising through social media (diamundialtb.org)

  5. CRAG Achievements: Media “TB’s global resurgence amplifies US risk” Dec 18, 2012 “TB, a neglected disease in Uganda” May 15, 2013

  6. CRAG Achievements: conference submissions • CRAG submitted an abstract on M&E for community engagement in TB research to the • Dorothy Namutamba also submitted an abstracts to the Union Conference • Barbara Seaworth will present on abstract at the NTCA annual meeting

  7. Ongoing CRAG activities • Finalizing an M&E framework for CRAG member activities • Support from LakshmyMenon, CDC Field Services and Evaluation Branch • Measures CRAG impact across multiple levels: • TBTC • Communities • Trial sites • Policymakers • CRAG members • Measures CRAG impact in multiple domains: • knowledge • attitudes • practices

  8. Ongoing CRAG Activities • Advocating for increased access to sutezolid and rifapentine for TB programs and research consortia • Advocating for increased funding and political will for TB research • - Translated Treatment Action Group TB R&D Funding Report into Spanish

  9. Upcoming CRAG Activities • Supporting Good Participatory Practice guidelines adoption in TB drug trials - Workshop on community engagement at Union conference - NIH R21 Grant on GPP • Consulting on S29x informed consent evaluation survey • Increasing CRAG involvement in reviewing early drafts of protocols • Increasing CRAG involvement in disseminating research findings to study participants

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