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José Ramón Fernández-Peña, MD, MPA Pamela DeCarlo Daniel Bao APHA, November 2006

Making sure research is used: Community-generated recommendations for disseminating research via non-traditional venues. José Ramón Fernández-Peña, MD, MPA Pamela DeCarlo Daniel Bao APHA, November 2006. CAPS.

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José Ramón Fernández-Peña, MD, MPA Pamela DeCarlo Daniel Bao APHA, November 2006

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  1. Making sure research is used: Community-generated recommendations for disseminating research via non-traditional venues José Ramón Fernández-Peña, MD, MPA Pamela DeCarlo Daniel Bao APHA, November 2006

  2. CAPS • The mission of the Center for AIDS Prevention Studies (CAPS) is to conduct domestic and international research to prevent the acquisition of HIV and to optimize health outcomes among HIV-infected individuals.

  3. CAPS Community Advisory Board • Established in 2000. • The CAPS CAB consists of 8-12 community stakeholders who attend quarterly meetings of the board. CAB members are selected to represent a variety of agencies and populations throughout the San Francisco Bay Area. • The goal of the CAPS CAB is to maintain a channel for community input into CAPS' research agenda, provide information about new community trends, concerns, and resources, and to assist CAPS to develop effective methods for reaching community stakeholders with our HIV prevention science.

  4. CAPS/CAB projects • Developing “Recommendations for Research Dissemination” • Developing Innovative Grants program • Attending CAPS peer reviews • Helping guide the CAPS Conference • Providing feedback for CAPS studies that do not have their own CABs

  5. Dissemination Guidelines • Why? • Community concerns • Researchers’ interest • Ethical standards • Strengthening research • Strengthening service

  6. Development Process • Sub-committee –draft • CAB review • CAPS TIE Core review • CAPS researchers review • Submitted to CAPS Director • Town Hall at CAPS • Further dissemination

  7. Dissemination • Posted to CAPS website • Town Hall for CAPS researchers • Disseminated at 2006 International AIDS Conference, Toronto, Canada • Abstract submitted to other conferences

  8. Dissemination Guidelines • Create a dissemination plan for all studies. • Include dissemination plan in grants. • Develop a budget that supports dissemination efforts. • Develop a timeline for dissemination efforts. • Get input from study participants and community representatives on the best methods to disseminate research findings. • Make research results accessible to various audiences through CAPS resources such as website, Research Portfolio, Newsletter, Science to Community reports, CAPS Conference.

  9. Dissemination Guidelines • Disseminate research progress and findings to study participants. • Disseminate research progress and findings to agencies and service providers. • Disseminate research findings to community. • Disseminate research findings to policymakers.

  10. Dissemination Guidelines To assist researchers, includes: • Sample grant language for dissemination plan • Guidelines for dissemination plan/timeline • Ideas for involving participants in dissemination • Local and national HIV/AIDS conferences, publications and websites used by service providers • Kinds of research data to be disseminated • Examples of effective dissemination

  11. Conclusions • Many researchers at CAPS are disseminating research in timely and community-friendly ways. • Barriers cited by researchers include: lack of time and money, little consideration of non-traditional dissemination during faculty promotions, government funders’ restrictions on publishing, and lack of knowledge regarding dissemination to communities.

  12. Conclusions, cont’d • While acknowledging these concerns, the CAPS CAB agreed that researchers should adhere to some minimum requirements for dissemination.

  13. CAPS CAB • Current: Co-Chair: Daniel Bao. William Bland, Amanda Elder, Beth Freedman, Lee Jewell, Alix Lutnick, Lydia Sausa • Past: José Ramón Fernández-Peña, Hank Wilson, Tim Berthold, Teresa Betancourt, Katie Kramer, Lisa Moore, Stephan Oxendine, Patricia Perkins, Brenda Storey, Dan Wohlfeiler

  14. CAPS TIE Core • CAB Co-chair: Carolyn Hunt. Past Co-chair: Ellen Goldstein • TIE Core Staff: Olga Grinstead, Director; Pamela DeCarlo, Dissemination Manager

  15. Contact Information Carolyn Hunt Carolyn.Hunt@ucsf.edu Recommendations for Research Dissemination available online: http://www.caps.ucsf.edu/projects/collaboration/dissemination.php

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