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Special Populations Special Policy Considerations

Special Populations Special Policy Considerations. Mike Splaine ADI Annual meeting Toronto, Ontario, Canada March 2011. Conflict of Interest Disclosure Michael Splaine. Consulting Fees: Alzheimer’s Association (US) and ADI for government affairs work. Presentation outline.

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Special Populations Special Policy Considerations

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  1. Special Populations Special Policy Considerations Mike Splaine ADI Annual meeting Toronto, Ontario, Canada March 2011

  2. Conflict of Interest DisclosureMichael Splaine • Consulting Fees: Alzheimer’s Association (US) and ADI for government affairs work

  3. Presentation outline • General State AD Plan Background • 4 special populations Persons with Down Syndrome Persons in rural/frontier communities Persons with early stage ADRD The entire population at risk

  4. Presentation outline part 2 • Describe each special population • Policies/plans developed • More resources

  5. State Plan Background • 50 states and 5 jurisdictions • ADRD a state policy priority on par with other major mortality issues • Permanent policy office • Change the policy makers image of ADRD • Improve the organizations

  6. Alzheimer’s Association US http://alz.org/documents_custom/StatePlanMap.pdf

  7. Typical state plan process • Legislation (using our model) • Task Force • About a year • Public inputs • Final report • Implementation

  8. Persons with Down Syndrome • 400,000 in US • Wrap around life support systems • Aging—themselves and their parents

  9. Policy ConsiderationsPersons with Down’s Syndrome • Training residential care staff • Extra outreach • Improving access by changing age requirements • Cross department communication

  10. Persons in rural/frontier Communities • North Dakota • 179,000 square kilometers • 636,000 people • 250,000 people in 5 large cities • Mobility, access, limited services • Health and social services don’t speak the same language

  11. Policy Considerations-Rural • Public health care managers (early data) • Tele-health systems • Support across distance

  12. Persons with Early Stage • Larger numbers • Participation in the process on and offline • Different needs/state in life for younger onset

  13. Policy Considerations: Early Stage • Detection of cognitive issues in medical and social service settings • Mobility/transportation • Change age based eligibility • Change the face of ADRD for policy makers

  14. Population at risk • All of us • Aging population • Minorities at higher risk • Caregiver health

  15. Policy ConsiderationsAt risk Population • Public health surveillance • Brain health promotion • State funded research

  16. National Plan Tracking by ADI • Standard analysis process and policies • Will include sub national plans • Special populations will be a topic • May launch expected

  17. Special Thanks • My colleagues in the Alzheimer’s Association chapter network and its amazing advocates • State official champions • mikesplaine@verizon.net

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