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Required New Variables for CDC-NPCR CER Specialized Registry

Required New Variables for CDC-NPCR CER Specialized Registry. Meichin Hsieh, MSPH, CTR Data Manager Louisiana Tumor Registry. LCRA Spring Conference April 14, 2011. CDC-NPCR Specialized Cancer Registry. Background

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Required New Variables for CDC-NPCR CER Specialized Registry

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  1. Required New Variables for CDC-NPCR CER Specialized Registry Meichin Hsieh, MSPH, CTR Data Manager Louisiana Tumor Registry LCRA Spring Conference April 14, 2011

  2. CDC-NPCR Specialized Cancer Registry • Background • This project was funded as part of the American Recovery and Reinvestment Act (ARRA) Comparative Effectiveness Research (CER) activities through the Centers for Disease Control (CDC).

  3. CDC-NPCR Specialized Cancer Registry Cont’d • Requirements • High quality cancer registry • Ability to enhance registry data • Expand electronic reporting • Ability to conduct CER • Experienced in patterns of care and outcomes studies • Sustainability

  4. Objectives • Describe new data items that need to be collected and sustained as a CDC-NPCR specialized cancer registry • Describe codes and coding guidelines

  5. Required New Variables • Cases Diagnosed in 2011 and after • Variables required collection by CoC hospitals • Height • Weight • Tobacco use • Source comorbidity

  6. Height and Weight • Purpose • Variables required when administering chemotherapy or other drugs given • Description • Different tumors for the same patient may have different values • Should be collected from source records once for each cancer

  7. Height and Weight cont’d • Code from medical record or physician office record sources includes: • Nursing interview guide • Flow chart • Vital stats

  8. Height and Weight cont’d • Coding instruction • Height & Weight entered should be that listed at or around the time of diagnosis • If no height and/or weight was listed when cancer was diagnosis, please use the height/weight recorded on the date closest to the date of diagnosis, but before treatment was started

  9. Height • Coding • Measured in inches (1 foot=12 inches) • Entered as 2 digit numbers • Code “98” for 98 inches or greater • Code “99” for unknown height • All inches values should be rounded to the nearest whole number • For example: 62.4 inches would be 62 and 62.5 inches would be 63 inches

  10. Height cont’d: Examples: 1 foot = 12 inches

  11. Weight • Coding • Measured in pounds (1 kg=2.2 pounds) • Entered as 3 digit numbers • Code “999” for unknown weight • All pounds values should be rounded to the nearest whole number • Ex: 155.5 pounds would be 156 pounds • If patients weight less than 100 pounds record weight with leading zero • Ex: Record 98 pounds as 098

  12. Weight cont’d: Examples: 1 kg = 2.2 pounds

  13. Tobacco Use Variables • Cigarette • Other smoking products • Pipes, cigars, kreteks (made with a blend of tobacco, clovesand other flavors) • Smokeless tobacco products • Chewing tobacco, snuff, etc. • Tobacco NOS

  14. Tobacco Use cont’d • Purpose • A risk factor that is associated with several cancer (e.g. lung, oral cavity, pharynx, larynx, esophagus, bladder, ….) • Description • Records the patient’s past or current use of tobacco

  15. Tobacco Use cont’d • Code from medical record or physician office record sources includes: • Nursing interview guide • Flow chart • Nursing assessment section • Vital stats • Others: H&P

  16. Tobacco Use cont’d • Coding schema 0 Never used 1 Current user (as of date of diagnosis) 2 Former user, quit within one year of the date of diagnosis 3 Former user, quit more than one year prior to the date diagnosis 4 Former user, unknown when quit 9 Unknown/not stated/no smoking specifics provided

  17. Tobacco Use cont’d • If only “No” documented in medical record then code 9. DO NOT code it to 0 (Never used). • If “None” documented in medical record then code 0(Never used)

  18. Source Comorbidity • Purpose • Tracts the sources of obtaining comorbidity information • Description • Record the data source from which comorbidities/complications were collected

  19. Source Comorbidity cont’d • Coding schema 0 No comorbid condition or complication identified/Not Applicable 1 Collected from facility face sheet 2 Linkage to facility/hospital discharge data set 3 Linkage to Medicare/Medicaid data set 4 Linkage with another claims data set 5 Combination of two or more sources above 9 Other source

  20. Source Comorbidity cont’d • CoC hospitals use only codes 0, 1 or 9 • Codes 2 to 5 will be coded only at central registry

  21. Thank you! Contact information: Meichin Hsieh E-mail: mhsieh@lsuhsc.edu Phone: (504) 568-5850

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