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Patients acess to their health data on the Danish national e-health portal

Patients acess to their health data on the Danish national e-health portal. Morten Elbæk Petersen. Agenda. The Danish Health Care System The eHealth Portal Bjarne’s story Experiences and challenges. The Danish Health Care System.

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Patients acess to their health data on the Danish national e-health portal

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  1. Patients acess to their health data on the Danish national e-health portal Morten Elbæk Petersen

  2. Agenda • The Danish Health Care System • The eHealth Portal • Bjarne’s story • Experiences and challenges

  3. The Danish Health Care System • Public health care (85 % of costs are financed through taxes) • Free access to most health services for all Danish citizens • A homogenous health care system NATIONAL: Legislation REGIONAL:5 Regions; 80 Hospitals and more LOCAL:98 Municipalities

  4. Step by step: Danish health it 1992: Health Data Network established 1994: MedCom established to standardize messages 2001: The regions involve the national government in the establishment of a National eHealth Portal 2003: the eHealth Portal (sundhed.dk) is launched 2004: the eHealth Portal supports log-on, and displays personal information 2008: Patient-to-patient dialogue introduced on sundhed.dk 2009: the eHealth Portal improves performance by updating platform using .net 2010: All regions make EHR’s available using the same standard

  5. Agenda • The Danish Health Care System • The eHealth Portal • Bjarne’s story • Experiences and challenges

  6. Objectives for sundhed.dk Sundhed.dk: • information related to the use of the healthcare service • communication between patients and the health care service • support the patient in attending to his or her individual health situation. • inter-patient communication on how to cope with chronic diseases; ”online patient networks”

  7. Agenda • The Danish Health Care System • The eHealth Portal • Bjarne’s story • Experiences and challenges

  8. Bjarne Bjarneis 58 years old and married. He has been diagnosed with diabetes 5 years ago. Bjarne has had a tough time adjusting to a life with diabetes, and has never put an emphasis on a healthy life style. Bjarne will end up costing the health services a great deal of money if he remains passive and is not offered prevention.

  9. Bjarne prepares for a check up Bjarne is summoned to a regular check up at his GP, and uses his netbanking id to access the eHealth portal and be reminded of the goals of his treatment. See what Bjarne finds

  10. Bjarne at the GP Bjarne’s GP access data that benchmarks Bjarne’s progress with other diabetes patients in Denmark. See what the GP finds Bjarne’s numbers show that he does not exercise enough and has more sugar in the diet than recommended.

  11. Bjarne at the GP Bjarne is motivated to start living healthier. Bjarne is referred to a patient education course in his municipality. Bjarne’s GP finds a relevant course for Bjarne in the cross-sectoral list of health and prevention programs offered by municipalities or hospitals. See what the GP finds

  12. Bjarne is given answers and suggestions Bjarne’s GP receives the results of the blood test 2 days later, and shares the results with Bjarne via a secure email. The GP adds a link with diet advice from the Doctor’s Handbook to the email. The GP reminds Bjarne that his next check up is at the hospital. See the link to diet advice

  13. Bjarne’s yearly check up at the hospital Bjarne asks a question regarding the relationship between his wellbeing and his diet. The doctor at the hospital access his Bjarne’s Medicine Profile with prescriptions to check if his medicine can explain his mood swings. See what the doctor finds

  14. Has his vision deteriorated? Bjarne is reminded that he should have his vision checked, since vision can be impaired as a consequence of diabetes. Bjarne has tried calling his ophthalmologist, but he has retired and the clinic is no longer open. The hospital doctor suggests that Bjarne should find a new ophthalmologist What does Bjarne do?

  15. His eyesight is worse Bjarne finds a new ophthalmologist in his area in the national directory of the eHealth portal. See what Bjarne saw before he chose The ophthalmologist discovers that Bjarne’s vision has deteriorated and that it is time for laser surgery.

  16. Laser surgery The operation is a succes and improves Bjarne’s sight. Bjarne remembers that he is intolerant of the eye drops he was prescribed an earlier time, but not which eye drops. The ophthalmologist wants to make sure that Bjarne uses eye drops, and accesses his Medicin Profile to avoid using the same eye drops. See how the ophthalmologist found the name of the eye drops

  17. Bjarne feels better The improvement of his sight helps Bjarne lighten up, and he is very motivated as he joins the patient education course of the municipality. Continue til main presentation

  18. Tilbage til forløbet

  19. Tilbage til forløbet Tilbage til forløbet

  20. Tilbage til forløbet

  21. Tilbage til forløbet Tilbage til forløbet

  22. Tilbage til forløbet Tilbage til forløbet

  23. Tilbage til forløbet

  24. Tilbage til forløbet

  25. Agenda • The Danish Health Care System • The eHealth Portal • Bjarne’s story • Experiences and challenges

  26. Has it made a difference? • What about Bjarne? • Acceptance from the general public • International and peer recognition

  27. What do the health services gain from involving Bjarne? A well prepared patient who already knows what needs to be adressed and allows the conversation to focus on motivation etc. A patient who feels co-responsible for his own health even though Bjarne may never be a ’healthfreak’ Avoided complications that would have resulted in comprehensive expenses

  28. Public acceptance: Total unique visitors

  29. Graf 2

  30. Documented effects • 1 million consultations and transport saved just by providing information • Online contact saves time and app. 10 million kilometers of transport • Patients agree that access to personal data helps assume responsibility • 55 % of the patients in cross-sector treatment find the digital exchange of information beneficial

  31. International and peer recognition • EU eHealth award 2004 • Top of the web 2005 (DK) • E-commerce award 2006 (DK) • The digitalization award 2006 (DK) • The Computerworld Honours Program 2007 Important recognition from • Health Consumer Powerhouse (2008) • ITIF - The Information Technology and Innovation Foundation (2009)

  32. Next step… national strategy for patientempowerment The strategy for 2010-2012 includes: • A more patient-centric presentation of data • More patient-to-patient dialogue • Extended opportunities for the citizens to comment and add data to their own records ex. Patients room. • Providing sundhed.dk-services as content for other platforms. • Telemedicine – as an expansion of existing solutions for diabetics and patients in AC Therapy • Enabling access from mobile phones.

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