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The Edinburgh NTRAC Centre (Part of the National Translational Cancer Research Network) and other things going on…

The Edinburgh NTRAC Centre (Part of the National Translational Cancer Research Network) and other things going on…. Alex Voss (avoss@inf.ed.ac.uk) 31.05.2005. NTRAC Centres (14 of them). Translational Research. Patient Care. Clinical Trials. Bench Science. Drug Development. Epidemiology.

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The Edinburgh NTRAC Centre (Part of the National Translational Cancer Research Network) and other things going on…

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  1. The Edinburgh NTRAC Centre(Part of the National Translational Cancer Research Network)and other things going on… Alex Voss (avoss@inf.ed.ac.uk) 31.05.2005

  2. NTRAC Centres (14 of them)

  3. Translational Research Patient Care Clinical Trials Bench Science Drug Development Epidemiology “Fast tracking research for patients”

  4. Aims • To recruit patients into translational cancer research and to support studies and trials by providing: • a trained workforce • an IT infrastructure for data curation and analysis • a resource of DNA and peripheral blood lymphocytes as well as fresh tissue • a core dataset collected as part of recruitment • data linkage with external data sources such as ISD (SMR1,6) or SCAN Audit • a research governance framework

  5. Research Governance / Information Assurance • Informed Consent & Public Trust in Medical Research • Data Protection and Data Sharing • Systems Security • Crossing Organisation Boundaries • Dealing with NHS IM&T • Supporting Informality, Need for Flexibility • Handling high-value, high-volume research data with limited budget and distributed IT infrastructure • Dealing with existing studies, resources and arrangements, e.g. breast unit tissue bank, freezer management systems, lab management systems, SOPs • Managing relationship with other national initiatives, e.g. NCRN electronic remote data capture tool, generic clinical system, …

  6. Lothian Research IT Strategy Group • Bringing together people interested in crossing the boundaries between NHS (LUHD) and Universities (UoE) • Scottish Cancer Research Network (SE) • Wellcome Trust Clinical Research Facility • NTRAC • LUHD R&D office • And others

  7. Lothian Research IT Strategy Group • Focussing on • networking and the crossing of organisational boundaries • Practical IT implementation problems in this context e.g., Access islands • Linking development on the research side with IM&T development in the NHS • Local group but with a view to link up with similar initiatives nationally

  8. UKCRC • UK Clinical Research Collaboration • All health departments signed up • £150M invested in England with coordinating centre in Leeds • Picture in Scotland emerging now, with Clinical Research Facilities at the centre

  9. Clinical Research Management Platform • Proposal developed by the Research IT Strategy Group • Aiming to support the management (rather than the conduct) of research • E.g., coordinating COREC information between organisations such as R&D offices, research networks, clinical research facilities as well as individual studies • Key building block for the UKCRC in Scotland.

  10. eHealth Portal • One-stop shop for the eHealth Research community to coordinate activities, find information, advertise events, … • Not just a website (passive) but linking in with eMail etc.

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