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Edo Agustian Indonesian Drug Users Network kornas@pkni.org. Experiencing HCV Infection – the treatment, the reality and the possibilities for Cure. Outline of Presentation. Overview of hepatitis C among people who inject drugs in Indonesia Indonesia’s national response
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Edo Agustian Indonesian Drug Users Network kornas@pkni.org Experiencing HCV Infection – the treatment, the reality and the possibilities for Cure
Outline of Presentation • Overview of hepatitis C among people who inject drugs in Indonesia • Indonesia’s national response • Barriers to testing and treatment access • Advocacy and community engagement
The national response to the prevention, treatment and management ofhepatitis C among people who inject drugs • Late response, fragmented • Indonesia does not conduct routine national surveillance • There is no national clinical guideline for diagnosis, treatment and care for HCV • The Ministry of Health first established a national program focused on viral hepatitis in 2011, under the Sub Directorate for Gastrointestinal Infections and Diarrheal Diseases.
Barriers to get test and treatment for Hep C in Indonesia: • Basic principles of Human Rights are still neglected • Lack of knowledge and awareness among community, general population and health worker • PUD’s are excluded from Indonesian National Insurance Health Scheme • Hep C in Harm Reduction comprehensive package is still neglected (Monitoring Quality of Harm Reduction Services by community perspective) • Stigma (Treatment Study for co-infected HCV/HIV still excluded active DU and their under MMT)
Advocacy and community engagement Since 2011, PKNI has worked with drug users, policy-makers, and service providers to raise awareness about Hep C and ensure that the community is meaningfully involved in the national response. Highlights include: • In 2011 conducted study : Barriers to Hep C Diagnosis, Management and Treatment among PWID in 4 Asian countries • Training of harm reduction service providers across 9 provinces • Policy briefing on Hep C • Collaboration with Indonesian Liver Researchers Association and Ministry of health on public Hep C campaign • Involved in developing National Guideline for Hep C Care, Support and Treatment with MoH in 2014 • Hepatitis C Community Task Force to input in MoH planning • Treatment price reductions and pharma advocacy