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CyberNephrology 2002 A Digital Resource for Kidney Professionals

CyberNephrology 2002 A Digital Resource for Kidney Professionals. Presented at the Sindh Institute for Urology and Transplantation (SIUT) Karachi, Pakistan - October 2002 by Judy Tarselli, RN. Contents :. A one page introduction to cyberNephrology A look behind the scenes

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CyberNephrology 2002 A Digital Resource for Kidney Professionals

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  1. CyberNephrology 2002A Digital Resource for Kidney Professionals Presented at the Sindh Institute for Urology and Transplantation (SIUT) Karachi, Pakistan - October 2002 by Judy Tarselli, RN

  2. Contents: A one page introduction to cyberNephrology A look behind the scenes cyberNephrology 2002: It’s more than just a website! CyberNephrology for your colleagues, staff, patients Related groups and initiatives Getting Connected, Exploring, Participating A look at the future

  3. cyberNephrology • A worldwide SOURCE of INFORMATION • A worldwide DISCUSSION • A global COMMUNITY All available at your fingertips! “A Digital Resource” Nephrology is the common thread. “for Kidney Professionals” “A Digital Resource for Kidney Professionals”

  4. cyberNephrology It’s more than just a website! “A Digital Resource for Kidney Professionals”

  5. A look behind the scenes…

  6. 1990’s: It started with three Basic Ingredients: COMPUTERS Launched “The Digital Era” INTERNET Digital Information Pathway NEPHROLOGY Study of the kidney A complex medical field!

  7. Plus:An Afffinity for New Technology Initial project supported by National Kidney Foundation (NKF) and International Society of Nephrology (ISN) Informatics Commission COMPUTERS NEPHROLOGY (NKF and ISN) INTERNET

  8. Plus: Knowledge, Enthusiasm and a Plan! Organized and Directed by Michele Hales Kim Solez, MD Pathology Dept. - University of Alberta - Edmonton, Alberta Canada

  9. THE PLAN: Simple, but technically challenging! “Let’s put those pieces together!” COMPUTERS NEPHROLOGY INTERNET

  10. THE GOALS: Far more complex! Establish GLOBAL COMMUNICATIONS Provide EDUCATIONAL RESOURCES with worldwide access Create a “NEW VISION” in the Nephrology Community

  11. (NOTE: Five years later, the goals are still the same!) GLOBAL COMMUNICATIONS EDUCATIONAL RESOURCES “NEW VISION” cyberNephrology “Home Page” - 2002

  12. GOAL #1:COMMUNICATION “Establish global communication system for nephrology-based discussions” Email discussion lists “1500 Nephrologists from around the world, available at your fingertips!”

  13. GOAL #2:EDUCATION “Provide universally-available educational programs and resources” Web-Based Atlases Pathology images Web-based programs Online Abstracts Virtual attendance at meetings PowerPoint presentations QuickTime videos Internet Links CD-ROM’s CME’s

  14. GOAL #3:A NEW VISION (Promote an Active and Caring Nephrology Community to help those patients and providers with the greatest need!) • Create an Internet-based Natural Disaster response program to help organize and direct worldwide rescue efforts related to nephrology • Support RenalTech, COMGAN and the other “CyberNephrology PLUS” partners!

  15. Work on the cyberNephrology project started at the University of Alberta in Canada

  16. The necessary pieces were gathered, organized, and assembled… Servers, clinical nephrology, broadband, renal pathology images, topics, names, cables, laptops, desktops, hemodialysis, modem, dieticians, telephones, digital imaging systems, videorecorder, nurses, peritoneal dialysis, pre-ESRD, transplant, printers, meetings, meds, antivirus programs, software, faxes, emails, list management, CMEs, conferences, travel, IT specialists, organizers, bone metabolism, funding, labwork, committees, updates, printers, etc., etc., etc.! COMPUTERS NEPHROLOGY INTERNET

  17. and finally connected! COMPUTERS NEPHROLOGY INTERNET

  18. www.cybernephrology.org cyberNephrology Launched on the Internet in 1997! COMPUTERS NEPHROLOGY INTERNET

  19. www.cybernephrology.org cyberNephrology And growing ever since! COMPUTERS NEPHROLOGY INTERNET

  20. cyberNephrology 2002 It’s more than just a website!

  21. CyberNephrology 2002 Kim Solez, MD Michele Hales The Goals NKF Advisory Board: • Robert Schrier, MD (Chair) • Kim Solez, MD • Steve Fadem, MD • John Daugirdas, MD • Steve Curd NKF cyberNephrology Additional staff members: Janice McDonald Gary Green University of Alberta

  22. Plus… 3000 Members around the World! And 18 different e-mail Discussion Lists!

  23. And it now has… Online texts and atlases Nephrology, Pathology, Transplant medicine Clinical Practice Guidelines

  24. Pathology Slides and Resources Case Presentations

  25. Virtual attendance at Meetings and seminars Outreach & Support Projects

  26. Internet Links to other kidney resources CD-ROMS For our low bandwidth members

  27. Calendar of Meetings and Events Abstracts, files, videos and photos from past meetings and events

  28. Information and support for staff and patients And More!

  29. The e-mail Discussion Lists • NEPHROL:The original discussion list! • “Home of the Nephrolers and Nephronauts!” • Quickly consult experts around the globe! • Letter or Digest forms available • NEPHROL-Digest: “Digest” form • NEPHMIN: “Minimal” Stripped-down version of Nephrol-Digest with all repetition and North American-specific content removed

  30. The e-mail Discussion Lists A Special Feature of NEPHROL! Transplant-related messages posted on NEPHROL are shared with CENTERSPAN: “Your comprehensive source of transplant information” AST American Society of Transplant Physicians ASTS American Society of Tx Surgeons www.centerspan.org

  31. The e-mail Discussion Lists NEPHADMIN: Nephrology Administrators NEPHBSCI: Nephrology Basic Science NEPHCNPT: Discuss individual clinical nephrology cases NEPHDEVEL: Humanitarian Projects and ISN Sister Centres program

  32. The e-mail Discussion Lists NEPHINDIG: Renal disease in indigenous peoples NEPHJNL: Nephrology/Transplantation Journal Club NEPHNPPT: Individual renal biopsy cases

  33. The e-mail Discussion Lists NEPHRONOL: Spanish-English discussion - nephrology subjects NEPHHIST: History of kidney medicine, ISN Video Legacy project interview transcripts IFKF-L: International Federation of Kidney Foundations MDDIALYSIS: US dialysis unit diirectors

  34. The e-mail Discussion Lists RENALPRO: Nephrology professionals: Nurses, Technicians, Dieticians, Social Workers, Administrators, Physicians, Engineers, etc. RENALRD: Renal dieticians, renal nutrition KIDNEYDISEASE: Adult patients with kidney disease. (This group now has 9 physician moderators and co-moderators answering questions!)

  35. The e-mail Discussion Lists NEPHKIDS: Parents of children with kidney disease, also teen and young adult kidney patients(Sue Conley MD and Melissa Gregory MD) ANNET: African Nephronet ARABNEPHROL: Arab language - started in 2001, spectacular success! (Abdulla Al Khader MD abd Yousef Boobes MD)

  36. The e-mail Discussion Lists

  37. Online texts and atlases Nephrology, Pathology, Transplant Examples: Schrier’s Atlas of Diseases of the Kidney AJKD: Atlas of Renal Pathology

  38. Schrier’s Atlas of Diseases of the Kidney www.kidneyatlas.org • Volumes: 5 • Chapters: 66 • Images: 2500 • Color graphics and PowerPoint files • Entirely searchable form! • 120,000 online “hits” per month! • CDR version is available for areas with slow or difficult internet access

  39. Schrier’s Atlas of Diseases of the Kidney

  40. Schrier’s Atlas of Diseases of the Kidney

  41. AJKD: Atlas of Renal Pathology

  42. Clinical Practice Guidelines NKF-K/DOQI ISPD UK-Renal Association CDC FDA and more!

  43. Clinical Practice Guidelines NKF-K/DOQI Kidney Disease Outcomes Quality Initiative

  44. Pathology Slides and Resources Educational Slides on Renal Parenchymal Diseases and Hypertension 1. Digital Images from the slide collection of Helmut Rennke, MD 2. Transplant Pathology Internet Services (TPIS)

  45. Pathology Slides and Resources Digital Images from the slide collection of Helmut Rennke, MD

  46. Pathology Slides and Resources Transplant Pathology Internet Services (TPIS)

  47. Case Presentations

  48. Virtual attendance at Meetings and seminars Since 1997: Create digital images and web pages within minutes - “virtual attendance” Abstracts, Text PowerPoint presentations QuickTime videos Digital images

  49. Outreach & Support Projects cyberNephrology + others!

  50. Internet Links to other resources • Transplant pathology Internet services (TPIS) • Journals • Clinical Practice Guidelines • Case Presentations • Nephrology rounds • New communication technology links • Reports • Standards for nephrology training

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