Internet Resources for Your Kidney Foundation in 2003 and Beyond!

1. Internet Resources for Your Kidney Foundation in 2003 and Beyond! Kim Solez, M.D.

2. Every Audience Now Diverse! Because the Internet is now mainstream, many of you have already solved most of the Internet related problems in your professional life. So when it comes to creating resources for a kidney foundation, you already know the basics of creating web, email, and chat resources. Nevertheless there are still many positive surprises, technology advances which can greatly enhance kidney foundation activities which you probably are not aware of, video conferencing, advanced searching. So this presentation will have something for everyone!

3. NKF cyberNephrology -Human Centered Computing Fostering nephrology’s embrace of the Internet and new technology since 1994 with Email and web resources. ISN homepage, websites which allow virtual attendance at meetings. www.cybernephrology.org www.cyber-medicine.org

4. Evidence-Based Medicine Sir Austin Bradford Hill, British Researcher: "All scientific work is incomplete- whether it be observational or experimental. All scientific work is liable to be upset or modified by advancing knowledge. This does not confer upon a freedom to ignore the knowledge we already have, or to postpone the action that it appears to demand at a given time. Who knows, asked Robert Browning, but that the world may end tonight? True, but on available evidence most of us make ready to commute on the 8:30 next day."

5. NKF cyberNephrology provides: Electronic/Internet versions of NKF publications, professional and patient education and peer support over the Internet using Email and web resources, medical textbooks online, hands on workshops, symposia, videoconferencing, and technology vision for the future. It is the embodiment of kidney medicine’s embrace of technology. A wealth of offerings for physicians, other nephrology professionals, and patients and families at: www.cybernephrology.org

6. NKF cyberNephrology can assist your kidney foundation with: • Creation of web, email, and chat resources (AIM and MSN messenger like, or IRC) • Recommending links for nephrology resources. http://www.cybernephrology.org/education/eduPhysicians.htm • Recommending searching resources on your web site. • Promotion of the resources you create for your foundation. www.cybernephrology.org

7. But putting matters more simply… The use of computers and the Internet should be enjoyable, practical, and productive. Web, email, chat resources should be easy to create. If you need help we are there to provide assistance. You can send us questions at the “contact us” link on www.cybernephrology.org or at the following Email addresses: Janice McDonald jm5@ualberta.ca Michele Hales Michele.Hales@UAlberta.CA Kim Solez, M.D. Kim.Solez@UAlberta.CA We can help you create Internet resources specific to the local language and culture of your own region.

8. NKF cyberNephrology - A remarkable NKF innovation! • In 1996 an NKF think tank recommended the creation of NKF cyberNephrology, initiated in April 1997. • Remarkably insightful, no other voluntary heath organization has had similar technology impact. Earlier Internet initiatives in other health disciplines - dermatology, anesthesiology, and nursing - were individual or institutional efforts. • Now as a consequence of this NKF initiative, nephrology has caught up to and surpassed these other disciplines, now has Internet resources superior to those in any other area!

9. All the More Remarkable Considering Nephrology’s size vs. all of Medicine • There are more than 800,000 physicians in the US and only about 5,000 are practicing renal medicine, so nephrologists represents only about 0.6% of total US physicians. • On the other hand, the cost of end stage kidney disease care is very high: 18 billion US dollars per annum in public and private money (source USRDS). This is nearly 2% of the 1 trillion dollar total annual health care budget of the US and rising rapidly.

10. Unique Resources for Patients Not Found In other Specialties • NEPHKIDS - For parents of children with renal disease, moderated by pediatric nephrologist. • KIDNEYDISEASE - For adult patients with kidney disease, moderated by 10 nephrologists all over the world! 18 Email discussion groups in all connecting more than 3000 health professionals and patients.

11. Email Discussion Groups

12. Email - Best Communication for Low Bandwidth Situations

19. NKF New Technologies Division • Directed by Gary Green. • Beautiful new redesign of NKF kidney.org page! • Chronic kidney disease K/DOQI guidelines now available electronically through efforts of NKF cyberNephrology

21. New Technologies Division NKF (New York team) (800) 622-9010 Gary Green garyg@kidney.org Anthony Della Camera anthonyd@kidney.org Brian Robilotta brianr@kidney.org Gordon Brown gordonb@kidney.org Dawn Maruna dawnm@kidney.org

23. Extending Internet knowledge from nephrology to medicine in general! • cyberMedicine - New Medicine http://www.cyber-medicine.org • Discipline upgrade from other areas which can learn from nephrology - Critical Care Medicine • cyberMedicine as part of the technology future - search strategies - efficient information retrieval, future of technology and the human spirit.

26. Internet Now Mainstream - Searching - A Wonderful World Out There!

27. General Search Tools http://www.alltheweb.com/ Currently searching 3,151,743,117 web pages http://www.google.com/ Google - Searching 3,307,998,701 web pages

28. Searching Web Pages of the Past - “Wayback Machine” http://www.archive.org/ Search 11 billion pages of the Wayback Machine The Internet Archive is building a digital library of Internet sites and other cultural artifacts in digital form. Like a paper library, provides free access to researchers, historians, scholars, and the general public.

29. Searching The “Invisible Web” Database pages and pages with a ? In the URL are excluded from standard searches. Search engine databases are created by robot programs called spiders, computer robot programs that crawl the web seeking search engine content. These spiders crawl or navigate the Web by following the links in the web pages that are already in the database of their parent search engine. If there is no link to a page, a spider cannot "see" it. They lack the ability to type or think of any string of characters. They not only lack fingers for typing, but also lack a brain capable of judgment.

30. Searching The “Invisible Web” One can seach the Invisible Web using the following tools: http://lii.org/ http://www.academicinfo.net/ http://www.completeplanet.com/

31. Internet Video Conferencing - Remote Collaboration/Education/Telemedicine

33. Video conferencing/Telemedicine/Telepathology The near future of medical education and practice! Internet video-conferencing affordable. There are two practical ways to establish this: Dedicated videoconferencing equipment from Sony or Polycom using Internet2/Abilene “research” Internet with guaranteed bandwidth. Desktop videoconferencing using iSight and iChatAV on Macintosh G4 or G5 computers.

34. Europe-Middle East ARNES (Slovenia) BELNET (Belgium) CARNET (Croatia) CESnet (Czech Republic) DANTE (Europe) DFN-Verein (Germany) GIP RENATER (France) GRNET (Greece) HEAnet (Ireland) HUNGARNET (Hungary) INFN-GARR (Italy) Israel-IUCC (Israel) NORDUnet (Nordic Countries) POL-34 (Poland) RCST (Portugal) RedIRIS (Spain) RESTENA (Luxembourg) SANET (Slovakia) Stichting SURF (Netherlands) SWITCH (Switzerland) TERENA (Europe) JISC, UKERNA (United Kingdom) Americas CANARIE (Canada) CEDIA (Ecuador)CNTI (Venezuela) CRNET (Costa Rica) CUDI (Mexico) REUNA (Chile) RETINA (Argentina) RNP2 (Brazil) SENACYT (Panama) Asia-Pacific AAIREP (Australia) APAN (Asia-Pacific) APAN-KR (Korea) APRU (Asia-Pacific) CERNET, CSTNET, NSFCNET (China) JAIRC (Japan) JUCC (Hong Kong) NECTEC / UNINET (Thailand) SingAREN (Singapore) TAnet2 (Taiwan) Internet2 International Memorandum of Understanding Partners

35. AAIREP (Australia) APAN (Asia-Pacific) APAN-KR (Korea) APRU (Asia-Pacific) CERNET, CSTNET, NSFCNET (China) JAIRC (Japan) JUCC (Hong Kong) NECTEC / UNINET (Thailand) SingAREN (Singapore) TAnet2 (Taiwan) CANARIE (Canada) CEDIA (Ecuador)CNTI (Venezuela) CRNET (Costa Rica) CUDI (Mexico) REUNA (Chile) RETINA (Argentina) RNP2 (Brazil) SENACYT (Panama No Arab or African Countries with Internet2 networks! BELNET (Belgium) CARNET (Croatia) CESnet (Czech Republic) DANTE (Europe) DFN-Verein (Germany) GIP RENATER (France) GRNET (Greece) HEAnet (Ireland) HUNGARNET (Hungary) INFN-GARR (Italy) Israel-IUCC (Israel) NORDUnet (Nordic Countries) POL-34 (Poland) RCST (Portugal) RedIRIS (Spain) RESTENA (Luxembourg) SANET (Slovakia) Stichting SURF (Netherlands) SWITCH (Switzerland) TERENA (Europe) JISC, UKERNA (United Kingdom)

36. Dedicated Internet Video-Conferencing Equipment Practical Now in Many Regions.

38. CA*net 4 Architecture: 22.5 Gbps! CANARIE GigaPOP ORAN DWDM Carrier DWDM Edmonton Saskatoon St. John’s Calgary Regina Quebec Winnipeg Charlottetown Thunder Bay Montreal Victoria Sudbury Ottawa Vancouver Fredericton CANARIE Optical switches Halifax Chicago Seattle New York CA*net 4 node Toronto Possible future CA*net 4 node Windsor

39. Many connections via Pacific Northwest Gigapop system in Seattle

40. NORDUnet is the Nordic Internet highway to research and education networks in Denmark, Finland, Iceland, Norway and Sweden. Connects to the European research and education network GÉANT at 10Gbit/s.

41. The AmericasPATH network connects Argentina (RETINA), Brazil (RNP2), Chile (REUNA2), São Paulo, Brazil (ANSP), and Venezuela (REACCIUN) 1Gbps

42. RBNet Russian Backbone Network; the primary science and education network of the Russian Federation 155Mbps NaukaNet An NSF-funded High Performance International Internet Services (HPIIS) project managed by the National Center for Supercomputing Applications at the University of Illinois at Urbana-Champaign to facilitate the connection of the Russian RBNet network to U.S. and international research and education networks.

43. In 2003-2004 iSight and iChatAV on Mac G4/G5 computers - practical in most areas of world.

44. Wireless Connectivity - Not Just for Landlubbers Anymore! BALTIC SEA MAKING WAVESNow travelers in the Scandinavian region (which has long been in the forefront of wireless technology) can get wi-fi while crossing the Baltic Sea. Passengers on Silja ferries running between Helsinki, Stockholm and Tallinn, Estonia, log on for free while seated near the bar.

45. Wireless Connectivity - Many applications within hospital practice BOSTON DOCTORS WITHOUT BORDERS Physicians at Beth Israel Deaconess Medical Center in Boston use wireless handhelds and laptops to submit prescriptions, r ead laboratory results and view X rays and ultrasounds. Above, an emergency -room doctor checks a PDA equipped with a plug-in wi-fi card .

46. Wireless Connectivity - An important focus of national connectivity initiatives. KRAKOW HIP TO BE SQUARE For decades, visitors to Krakow's main city square have admired the historic buildings, browsed the souvenir stands and sipped coffee at the many outdoor cafés. This year, for the first time, they get to browse online for free-thanks to a nationwide effort to bring wi-fi to Poland .

47. NKF cyber Nephrology - Visioning the future!

48. Medicine of the FutureNew Medicine - Individualized Medicine

49. But putting matters more simply… The use of computers and the Internet should be enjoyable, practical, and productive. Web, email, chat resources should be easy to create. If you need help we are there to provide assistance. You can send us questions at the “contact us” link on www.cybernephrology.org or at the following Email addresses: Janice McDonald jm5@ualberta.ca Michele Hales Michele.Hales@UAlberta.CA Kim Solez, M.D. Kim.Solez@UAlberta.CA We can help you create Internet resources specific to local needs, language and culture of your own region.