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Citizens and Personal Health Records – the Case of Nelson Mandela Bay. AUTHORS: Dalenca Pottas & Nicky Mostert-Phipps PRESENTED BY: Nicky Mostert-Phipps. Presentation. Background Research method Results Conclusion Questions. Background.
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Citizens and Personal Health Records – the Case of Nelson Mandela Bay AUTHORS: Dalenca Pottas & Nicky Mostert-Phipps PRESENTED BY: Nicky Mostert-Phipps
Presentation • Background • Research method • Results • Conclusion • Questions
Background • Personal-Health Record (PHR): patient is owner and main user • PHR definition: • Electronic • Patient-controlled • Used for management of health information • Secure • Private • Benefits: • Better communication and sharing of information • Patient engagement
Background (continued) • Despite benefits PHR adoption low • No data found relating to South African context • Focus: • Attitude of citizens towards maintaining personal health records and using electronic tools to capture a personal health record.
MethodStudy design and context • Explore citizen attitudes towards maintaining personal health records and use of tools to capture an electronic personal health record • Data gathered: July & August 2012 in the Nelson Mandela Bay municipal area, South Africa • Nelson Mandela Bay: city of Port Elizabeth, the nearby towns of Uitenhage and Despatch, and the surrounding rural or agricultural areas
MethodQuestionnaire design and administration • Questionnaire designed to be brief • 18 Questions: • Demographics • Health status • Internet access and literacy • Perceptions of the current medical record • Concerns around creating an electronic medical record • Questionnaire loaded on tablets • Seven data collectors • Thirty-two data collection points (supermarket stores) • Responses captured: 467
MethodLimitations • Executed in specific geographical region – limits generalizability • Good response rate but selection bias may be present • Purpose: explore citizen views in Nelson Mandela Bay area
ResultsInternet access and literacy • Respondents’ ability to navigate the Internet: • 45% considered themselves to be ‘skilled or very skilled’ at navigating the Internet to search for information • 47% considered themselves to be ‘skilled or very skilled’ at uploading and downloading information • 52% considered themselves to be ‘skilled or very skilled’ at sending emails
ResultsMedical record availability • Important for healthcare provider to have their complete medical records available and know their full medical history: • 6% important • 20% very important • 70% extremely important • Actual availability of medical records: • 42% indicated that their healthcare provider is not informed of their full medical history and that the complete record is not available
ResultsAwareness of online Personal Health Records • PHR: Typically an online tool that allows an individual to create and manage a summary of all his health information in one convenient place. It contains information on past and current illnesses, allergies, immunizations, medications, procedures, test results, and so forth. • 84% not aware of existence of such a tool
Conclusion • Barriers to adoption: • Lack of awareness • Concerns relating to privacy of personal health information • Internet access and literacy • Promise for emerging mobile PHR (mPHR) market • Participants suffering from chronic medical condition more likely to keep record of their medical history
Any questions? • Please contact presenter: nicky.mostert@nmmu.ac.za