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West Texas Cancer Survivors Network – Phase 2 CPRIT Grant #PP130071. Program Director: Katherine Chauncey, PhD, RDN Program Co-Director: Barbara Pence, PhD Associate Director: Janet Basom, RDN, LD. CPRIT – Cancer Prevention and Research Institute of Texas
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West Texas Cancer Survivors Network – Phase 2CPRIT Grant #PP130071 Program Director: Katherine Chauncey, PhD, RDN Program Co-Director: Barbara Pence, PhD Associate Director: Janet Basom, RDN, LD
CPRIT – Cancer Prevention and Research Institute of Texas • Established in 2007 by the overwhelming approval of Texas voters • Goals are: • To expedite innovation and commercialization in the area of cancer research • To enhance access to evidence-based prevention programs and services
Cancer Survivors • More than 14 million in the United States • Testament to early detection and treatment • The Downside, • Increased risk for second primary cancers • Increased risk of comorbidities e.g. cardiovascular disease, diabetes, osteoporosis • Increased risk functional decline • Cancer survivors in rural West Texas often lack access to healthcare services and support groups that can improve their health outcome
WTCSN – Phase 2“Connecting Cancer Survivors for Better Health” • WTCSN- Phase 1 ended August 2012 • CPRIT moratorium delayed renewal 12/01/2013 • Funded for 3 years; ends December 2016 • Phase – 2 is an initiative to expand and enroll West Texas cancer survivors in a network – • To provide cancer survivor information, • To enhance quality of life • To encourage healthy habits • To reduce cancer recurrence and prolong survival
WTCSN Accomplishments • Enrolled 485 enrollees from predominantly rural areas in two years • Established infrastructure to support recruitment to the network • Expanded Cancer Nutrition Network for Texas (CNNT) website to accommodate WTCSN • Educational resources & online enrollment form • Website tracking established for evaluation purposes • Qualified for HONCode certification • Expanded Nsights newsletter to enrollees and partners • Activated toll free and fax numbers to facilitate enrollment, questions, and resources • Developed Cancer Nutrition Toolkit for network enrollees • English and Spanish language versions • Resources from NCI, ACS, AICR, CNNT Passport, DVD, CD
WTCSN-Phase IIRenewal Grant Goals • Maintain current WTCSN and expand it to the entire TTUHSC Service Area (aka West Texas) • Design and implement a Cancer Survivorship Care Plan (SCP) to be used by the survivor and their primary care physician (PCP) to monitor his/her post-treatment care • Develop, pilot test, and implement tailored health communication messages to improve lifestyle behaviors among cancer survivors
TTUHSC Health Service Area • 108 counties; 50% of Texas land mass • Home to over 2.8 million people or 11.2% of the population of Texas • 98 counties are rural and 49 of those are considered frontier counties with fewer than 10 people per square mile • Served by eight metropolitan centers: Abilene, Amarillo, El Paso, Lubbock, Odessa/Midland, San Angelo, and Wichita Falls • Contributes 81% of the oil (on-shore); 92% of the wind energy; 86% of the cotton; over 88% of the wheat, sunflower seeds, peanuts; 66% of the cattle; and over 60% of the wine-producing grapes, sheep, and corn to the rest of the state • Failure to distribute cancer nutrition information and develop survivorship services to this area creates a major obstacle in Texas’ effort to diminish cancer mortality
WTCSN-Phase 2 Specific Aims Re-establish the Network by reaching counterparts of existing WTCSN partners and developing new partnerships Establish a system of “active referral” with providers,community cancer centers, & partners Demonstrate knowledge and utilization of SCPs in post-treatment care by Network enrollees Establish baseline knowledge & behaviors of Network enrollees in terms of nutrition, diet, physical activity, QoL, and health status Demonstrate positive changes in knowledge & behaviors of Network enrollees in terms of nutrition, diet, physical activity, QoL, and health status
WTCSN-Phase IISurvivorship Care Plans • Significant addition to our educational mission • Key Element in the 2012 Texas Cancer Plan • Recommended by both the American Cancer Society, the Institute of Medicine, and other advocacy organizations • Inform the survivor and make them aware of their post-treatment care • Individualized to the survivor’s type of cancer and stage of survivorship
WTCSN-Phase IITailored Health Messages • Focused on nutrition/diet, physical activity, and quality of life (QoL) • Tailored to 4 parameters: • Stage of cancer survivorship • Type of cancer • Whether overweight or obese • Level of physical activity • Significant in that it has never been attempted in a general population of diverse cancer survivors • Can impact cancer recurrence and survival
Outreach Tools Website www.ttuhsc.edu/wtcsn
Outreach Tools NetworkEnrollment
Outreach Tools Agreement to be Contacted for Research
Outreach Tools Patient Newsletter A Fresh Look at Exercise 2 Age and Cancer Risk 3 It’s Never Too Late Teachable Moments 3 Preventable Cancers Nat’l Nutrition Month 4
Outreach Tools Professional Newsletter A Fresh Look at Exercise 2 Age and Cancer Risk 3 It’s Never Too Late Teachable Moments 3 Preventable Cancers Nat’l Nutrition Month 4
WTCSN-Phase IINew & Expanded Partnerships • American Cancer Society(Regional Affiliates) • Association of Community Cancer Centers (ACCC) • F. Marie Hall Institute for Rural and Community Health • West Texas Area Health Education Centers (AHECs) • Texas AgriLife & Cancer Specialists • Texas Rural Health Association (TRHA) • UMC Southwest Cancer Treatment & Research Center • TTUHSC Depts. of Family Medicine & Pathology
WTCSN- Phase 2Mutually Beneficial Partnerships • What we need from partners – • Recruitment - Assistance in finding and recruiting cancer survivors to the Network • Health Messages - Development and dissemination of health messages: Nutrition/Diet; Physical Activity; Quality of Life • Survivorship Care Plan - Promotion of the SCP to the cancer survivor to monitor post-treatment care • How can we assist you?
Contact Information Kathy Chauncey, PhD, RDN kathy.chauncey@ttuhsc.edu Barbara Pence, PhD barbara.pence@ttuhsc.edu Janet Basom, RDN, LD janet.basom@ttuhsc.edu Telephone: 806-743-6153 Website: www.ttuhsc.edu/wtcsn Email: wtcsn@ttuhsc.edu