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Working with young people with HIV

Working with young people with HIV. David Cox Health Adviser Courtyard Clinic St Georges London. Outline of presentation. Adolescent Transition Clinic Young Adult Clinic Discloser Working in GU setting with few young people with HIV/AIDS Way forward. Adolescent Transition Clinic.

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Working with young people with HIV

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  1. Working with young people with HIV David Cox Health Adviser Courtyard Clinic St Georges London

  2. Outline of presentation • Adolescent Transition Clinic • Young Adult Clinic • Discloser • Working in GU setting with few young people with HIV/AIDS • Way forward

  3. Adolescent Transition Clinic • Service user consultation • Questionnaire & 1:1 • After school clinic • Not in paediatric setting • Access to sexual health advice and screening • Food, magazines and music

  4. Adolescent Transition Clinic • Started June 2005 • Adult HIV/GUM Department • First Wednesday of every month • Clinic time 4–7pm

  5. Team • Paediatrician • Adult HIV/GUM Physician • Paediatric HIV Nurse • Adult HIV/GUM Nurse • Health Adviser • Specialist HIV Pharmacist

  6. Service Users • Cohort - 33 young people • Age range 15yrs – 18yrs • All vertical transmission • Requirement - must know diagnosis

  7. Issues • Relationships • Sexual health needs • Disclosure to friends and partners • Adherence • School, College and University • Careers advice

  8. Future Plans • Additional Nurse Led Clinic 1/12 • Young Adult Clinic 18yrs to 24yrs • Support Worker – careers,housing,benefits • Age appropriate information booklets • Increase patient involvement PPE • Explore text service • More funding

  9. Transition • 10 young people transitioned • Choice of centre • Summary of care • Medical • Psycho-social

  10. Young Adult Clinic • Started March 2009 • Adult HIV/GUM Department • Second Wednesday of every month • Clinic Time 4–7pm • Vertical and Sexual transmission

  11. Team • Adult HIV/GUM Physician • Adult HIV/GUM Nurse • Health Adviser • Specialist HIV Pharmacist • Advice and support worker

  12. Service Users • 15 young adults • Age range 18yrs – 25yrs • Vertical and sexual transmission

  13. Disclosure ?

  14. Issues for disclosure • Accepted own HIV diagnosis • Support network established • Relationship has developed to a point of trust • Aware of possible negative responses

  15. Issues for disclosure • Time / Space / Place • Information on where and who to get support from • Clear and direct • Language • Access to immediate support if necessary

  16. Issues for disclosure • Develop closer friendships/relationships • Before/during sexual relationship • Own need • Unsafe sex/split condom/PEPSE

  17. Issues of disclosure • Impact on self • Impact on others • Loss of confidentiality • Others who know diagnosis • Stigmatisation / Isolation • Loss of control

  18. Working with young people with HIV…… • Develop links with Paediatric Services • Address sexual transmission/safer sex • Check support services in your area and see if young adult friendly • See regularly and review • Ask for support from other centres

  19. National Support Agencies • CHIVA www.chiva.org.uk • Body and Soul www.bodyandsoulcharity.org • National Children’s Bureau www.ncb.org.uk • Blue Sky Trust - Booklet www.blueskytrust.org

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