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Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Ba

2002-2012. 10 YEARS OF LIFE . Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Barcelona. “ Rare Diseases a model of EU Solidarity”. ¿Why ENERCA ?. Visit your doctor…. The doctor does some tests…. You feel ill….

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Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Ba

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  1. 2002-2012 10 YEARS OF LIFE Dr. Joan Lluis Vives-Corrons Head of ENERCA project Head of the Red Cell Pathology Unit Hospital Clínic - IDIBAPS of Barcelona “Rare Diseases a model of EU Solidarity”

  2. ¿Why ENERCA ? Visit your doctor… The doctor does some tests… You feel ill… …and says: you have anaemia! The doctor prescribes iron pills…

  3. ENERCA 2012 ENERCA 2012 With the RIGHT DIAGNOSIS you feel better

  4. How ENERCA reduces Health Inequalities? BEST PRACTICE DATABASE PATIENT’S EMPOWER MENT KNOWLEDGE

  5. Recommendations Clinical Patient care

  6. Training courses

  7. European Symposium on Rare Anaemias

  8. THE FUTURE: Networking Moving forward to the creation of a European Reference Network (ERN) of Expert Centres on Rare Anaemias ENERCA WHITE BOOK

  9. THE FUTURE: Telemedicine and Telediagnosis Medical Advice ENERCA has tools and experts for a better diagnosis… Why not sharing knowledge and expertise ? MEDICAL ADVICE Second opinion / Interprofessional support Case manager Experts Diagnostic orientation Experts information Diagnosis

  10. Collaboration with MEDICAL ADVICE THE FUTURE: Research KNOWLEDGE NEW TRENDS

  11. Why CIBERER? The Biomedical Network Research Centre on Rare Diseases (CIBERER) is one of the 9 public consortiums set up at the initiative of the Carlos III Health Institute (ISCIII)-Ministry of Science and Innovation, to act as a reference to coordinate and foster research into Rare Diseases in Spain. Mission • The knowledge generated is translated from the laboratory to clinical practice Translational Research

  12. Network Structure • 60 Research Groups 29 Consorted Institutions • Universities, Hospitals, Research Centers thanks to CIBERER have created an innovative network structure: offers opportunities of research actions and public-private collaboration • The centre encloses clinical and basic researchers promoting Cooperative Research in RD

  13. ¡THANK YOU!Enerca Coordination TeamHead of Project - J.L. Vives Corrons (jl.vives@enerca.org)Project Manager - María del Mar Mañú Pereira (maria.manu@enerca.org)Project Assistant - Laura Olaya Costa (laura.olaya@enerca.org) Red Cell Pathology UnitHospital Clinic i ProvincialUniversity of Barcelonac/ Villarroel 170080036-BarcelonaPhone: +34 934515950www.enerca.org

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