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EPF VALUE PLUS Conference. Miningful Patients Involvement in EU Health Programs and Polices Göteborg, December 10, 2009. Maintaining the Momentum and Next Step. Tomasz Szelągowski General Director Federation of Polish Patients. Our goals. Integration of patients’ organizations
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EPF VALUE PLUS Conference Miningful Patients Involvement in EU Health Programs and Polices Göteborg, December 10, 2009. Maintaining the Momentum and Next Step Tomasz Szelągowski General Director Federation of Polish Patients
Our goals Integration of patients’ organizations Patient empowerment and advocacy Development of patient knowledge and their social awareness Other common issues…
Why Patients voice? • Unique experience • Confirmation & correction • Independency • Patients, just like journalists workfor public assurance and opinion making
Meaningful Involvement – activities - EPF • Membership • Manifesto • EPF Value+
Europe context • Importance of partnership with EU institution • Influence on countries governments from EU level • Involvement in events organized by P.O. on national level • Solid back-up on access to EU funds
Euro-Asian Initiative • 18 countries • Patients’ Safety • Patients’ Rights • Healthcare literacy • Braking boundries
The Treaty for Integrationof Patients’ Organization • Three patients’ organizations • Example of a good practices • Open form www.porozumienie.federacjapp.pl
The White Summit recommendations • Patient Centered Healthcare System reforms • Patient Safety compliance • Ombudsman – power of the voice Strategyfor HealthcareSystem reforms
Patient involvement in health policy • Not sufficient recognition of patients’ org. • Low quality of projects done by patients organizations • Low leadership and management skills • Need for communication and marketing skills improvement
National context • Publications • Going for country tours • Cooperation with Universities • Joint educational projects with medical professionals • Sharing of good practices from around the world
Challenge of the Third Millennium Protection of patients’ rights Đula Rušinović-Sunara, M.D., M.Sc. Vice-President WAML, Chair of the International Committee of the WAML on Patients’ Rights Representatives
Be empowered to set new standards