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The Northern Ireland Longitudinal Study (NILS) BSPS Conference September 2007 David Marshall (NISRA). PRESENTATION CONTENT. What is a Longitudinal Study? What is the NILS? Why does NI need an LS? How Matching was completed Security/Confidentiality Projects.

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PRESENTATION CONTENT

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  1. The Northern Ireland Longitudinal Study (NILS) BSPS Conference September 2007 David Marshall (NISRA)

  2. PRESENTATION CONTENT • What is a Longitudinal Study? • What is the NILS? • Why does NI need an LS? • How Matching was completed • Security/Confidentiality • Projects

  3. 1. WHAT IS A LONGITUDINAL STUDY? • A Study of the same group of people over time

  4. Birth of Child Birth of Child Census Census Census Stillbirth Divorce Marriage Cancer Death Address Change Address Change Example 27-year old Female in 1991 | | | | | | | | | | | | | | | | | | | | | | | 1991 2001 2011

  5. 2. WHAT IS THE NILS? • Database of individuals and their life events that can be accessed (in a controlled way) by researchers • Began work in 2003 • Launched in December 2006 • Funded by the Health Department in NI • Steering Group

  6. 104 NI birth dates (4 LS, 20 SLS) 2001 Census-based Main Data Sources Demographic Data from Health Registrations 2001 Census Births/Deaths Registrations Property Valuations 2. WHAT IS THE NILS? cont’d

  7. 2. NILS Mortality Dataset • Additional exercise • All deaths post 2001 linked to Census • 65,000 deaths linked • Population at risk is 2001 Census • Compared to 20,000 in NILS main sample • Many of death-based analyses will probably be carried out on this until further information included in NILS

  8. 3. WHY DOES NI NEED AN LS? • Different People • Different issues • Different Policies

  9. 4. HOW MATCHING WAS PROCESSED • Data Preparation • Automatic Matching & scoring • Exact Matching • ‘Fuzzy’ Matching • Manual • Confirmation • Searching

  10. 4. MATCHING LEVELS Approximately : • 50% of matches were exact • 30% very good fuzzy matches • 10% manual confirmation on fuzzy matches • 10% Manual searches of database • 87.4% unadjusted match rate • 96.4% adjusted • for Census imputation, accuracy of health service records

  11. 5. SECURITY/CONFIDENTIALITY • Processed Under Census Legislation • Personal Data & Sensitive Personal Data • Research Approvals Group and application process • Researchers only allowed access to anonymised records • Data Held in Secure Environment • Closed network • Biometric access to PCs • No output media allowed (CDs, Data Sticks, Print-outs) • All output checked for Disclosure

  12. 6. NILS Projects • Temperature-related mortality and housing • Religion / denomination differences in mortality • Impact of non-linkage using NILS mortality

  13. Some test findings so far…. • Migration ‘Stickiness’ • Cultural and educational variables in fertility analyses important • Carers have lower mortality • Mortality Rates by Religion • Suicide risk is strongly related socio-economic disadvantage and social support at an individual level & area factors have no independent effect

  14. 6. ESRC/RDO Money for Researchers • £300,000 for short research projects • to raise awareness of NILS • Application Process (2 stage)

  15. SUMMARY • 28% Sample of NI Population • Includes 2001 Census, birth/death and heath service registration data • Data held securely within legislative boundaries • Projects started and first paper accepted in academic journal

  16. The Northern Ireland Longitudinal Study (NILS) BSPS Conference September 2007 David Marshall (NISRA)

  17. The Northern Ireland Longitudinal Study (NILS) nils.nisra@dfpni.gov.ukwww.nisra.gov.uk/nils

  18. Deaths 2001 Census Database Births to Mothers 1991 Census Births to Fathers Babies linked to Birth Reg. Pre 2001 Stillbirths & Infant Deaths Births Data (baby linked to Birth Registration) 2001 births onwards Migration (Immigrants, Emigrants, Re-Entrants & Within NI Movers) POINTER Address Database VLA/Rating Data Contextual Data NILS Core Data Events Central Services Agency Key demographic information on NILS members (514,000 live) @ Census Date New members (36,000)

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