Betsy L. Humphreys Deputy Director US National Library of Medicine

1. Betsy L. Humphreys Deputy Director US National Library of Medicine National Institutes of Health, Department of Health & Human Services blh@nlm.nih.gov Connecting to Opportunities: The NLM Update

2. Connected Opportunities • Electronic Health Records ↔ Knowledge Sources • Clinical & Translational Research • Disaster preparedness & response • Health Literacy, K-12 Education • Recruitment to Our Profession

3. 45 CFR 170.314(a)2014 EHR Certification Criteria

4. More opportunity to link to link to NLM resources via APIs…

5. MedlinePlus Connect Problem, medication, or lab code-based request MedlinePlus Connect EHR/Health IT System Consumer health information targeted response Patientportal Clinical system Slide 5

7. Recent MedlinePlus Connect Enhancements • Diagnosis Codes • Links to related information for patients in Web Service response • Responses to many more codes • Medication Codes • Dramatically increase in number of codes we can respond to & improved precision • Direct links to matching pages of medication information in Web Service response • Just Released: Spanish responses, too Slide 7

8. www.nlm.nih.gov/healthit/meaningful_use.html • MedlinePlus Connect • RxNorm • SNOMED CT • LOINC Slide 8

9. A New Knowledge Source http://livertox.nih.gov/

10. And a rapidly expanding one…

11. Connected Opportunities • Electronic Health Records ↔ Knowledge Sources • Clinical & Translational Research • Disaster preparedness & response • Health Literacy, K-12 Education • Recruitment to Our Profession

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14. Refined recruitment status searching

15. Better access to history of changes

17. More help in interpreting records …

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19. More information for data submitters

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21. Eight presentations with audio and slides Available under “Online Presentations” at http://clinicaltrials.gov/ct2/manage-recs/present ClinicalTrials.gov training 21 • Overview of ClinicalTrials.gov • Key FDAAA Issues • PRS Information and Data Review Process • PRS Accounts and Registration Results 5. Participant Flow Module 6. Baseline Characteristics Module 7. Outcome Measures and Statistical Analysis Module 8. Adverse Events Module

22. NLM Supplements to Research Grantsfor Informationist Services • 8 administrative supplement awards made by NLM to research grantees of Institutes of Aging, Cancer, Dental, Deafness, Eye & NLM • Awards bring 15 librarian information specialists into research settings, and measure the value of their contributions • Three of the librarians are former NLM Associate Fellows • Co-funding from Deafness & Cancer Institutes

23. Some Examples • R01 EY-21590, Grundfest, Warren H. UCLA. Grant title: Non-contact, THz Sensing of Corneal Hydration. Lisa Federer, Louise Darling Library • R01 CA-132935, Luckmann, Roger. U Mass Worcester. Grant title: Promoting Breast Cancer Screening in Non-Adherent Women. Sally Gore, Souter Library • R01 CA-116477 Sgouros, George. Johns Hopkins University. Grant title: Dose-Response in Radionuclide Therapy. Victoria Goode, Welch Medical Library • R01 DC-011329, Svirsky, Mario A. New York University. Grant title: Clinical Management of Cochlear Implant Patients with Contralateral Hearing Aids. Theodora Bakker & Karen Hanson, NYU Health Sciences Library • R01 AG-040100, Szanton, Sarah. Johns Hopkins University. Grant title: Reducing disability via a Bundled Bio-Behavioral-Environmental Approach. Claire Twose & Jennifer Darragh, Welch Medical Library

24. Connected Opportunities • Electronic Health Records ↔ Knowledge Sources • Clinical & Translational Research • Disaster preparedness & response • Health Literacy, K-12 Education • Recruitment to Our Profession

25. You have experts in your midst…

26. Connected Opportunities • Electronic Health Records ↔ Knowledge Sources • Clinical & Translational Research • Disaster preparedness & response • Health Literacy, K-12 Education • Recruitment to Our Profession

27. More tools to reach more populations

28. After School Activity Club http://sis.nlm.nih.gov/outreach/k12.html • Developed by cross curriculum middle school teachers • Two Science • One English • One Social Studies • Tox Town as core research tool • Science inquiry integrated with social action • Six units 1. Water quality 2. Air quality 3. Chemicals in Your Home 4. Food Safety 5. Runoff, Impervious Surfaces, and Smart Development 6. The Great Debate: Bottled vs. Tap Water Slide 28

29. GeneEd • Portal of genetic resources for high school students and teachers • National Association of Biology Teachers survey defined the need • Partnership between: • NLM – SIS, NCBI, Lister Hill - Genetics Home Reference • National Human Genome Research Institute • ICF Genetics subject experts Slide 29

30. Exhibitions - a great outreach tool

31. Soon to have traveled to all 50 states…

32. www.nlm.nih.gov/nativevoices traveling version in development

33. Connected Opportunities • Electronic Health Records ↔ Knowledge Sources • Clinical & Translational Research • Disaster preparedness & response • Health Literacy, K-12 Education • Recruitment to Our Profession

34. WE are our own best recruiters 2012/2013 NLM Associate Fellows

35. “Working at NLM has truly been life changing. The encouragement I received from many of the folks here really inspired me to go into health sciences librarianship. Prior to coming to NLM, the thought of becoming a librarian never even crossed my mind.” - October 12, 2012 2012 MLA/NLM Spectrum Scholar

36. Thank you.Betsy L. Humphreys, MLSDeputy Directorblh@nlm.nih.gov