Hardwiring the Parent Voice Building a Foundation called Family Support Services

1. Hardwiring the Parent Voice Building a Foundation called Family Support Services

2. Presenters Kris Green Supervisor, Family support services Ted Hawley Family Action Council

3. Today’s objective • Describe successful techniques to hardwire family needs for services at the bedside • An example of a organizational chart that redefined family-centered care as family support services • Using “S.W.O.T.” and “priority matrix,” as tools to start a plan for your hospital on: 1. Goal setting 2. Recruiting parents 3. Funding opportunities 4. Getting established

4. Family-Centered Care is a philosophy of care that • Recognizes and respects the pivotal role of the family in the care of an ill child • Supports the family, as they define it, building on their strengths • Promotes a healthy pattern of living • Views professionals and the parents as equals in the goal of achieving what is best for the child

5. Key Elements of FCC process • The family is the constant in the child’s life • Information exchange is unbiased • Recognize and respects different methods of coping • Encourages and facilitates family to family support • Found not only in program or at the bedside, but incorporates POLICY

6. This means that through program and administrative development, families and parents are fully integrated in the care delivery at the Children’s Hospital so that they can be the best parents for their child who is admitted to the hospital with a diagnosis that changed their family as they knew it

7. Remote Alaska . . . . • Photo removed

8. Alaska’s Geographic & Diversity Challenges (scale)

9. Hospital within Hospital:Providence Alaska Medical Center • 360 Bed Campus • 99-107 Beds are the Children’s Hospital and Women’s Center - 26 bed pediatric center - 37 licensed bed NICU (census 45+) - 32 post-partum - 7 LDR • Outpatient subspecialty clinics

10. Lofty goals: Bringing change to an 75 yr. old hospital • Photo removed The journey of many steps, is worth the reward

11. History of family involvement • 1991 - Parents for Parents-Volunteer Group • 1996 – Focus group that supported remodel planning and program development • 1997 – Family Advisory Council. • 1998 – Part time Parent Coordinator hired • 2000 – FT position • 2004 - Family Support Services concept for FCC initiatives to ancillary services; 1.5 paid parent roles • 2006- Family Support Services launched

12. Family Support ServicesPurpose (06’) Compassionately provide therapeutic family-centered care by collaborating to support those in need as they navigate the healthcare system.

13. Family support services (06’)a multidisciplinary design • Program development (in- & out-patient) • Volunteers - (Hospital & Community) • Parent in Board roles (FAC and Governing) • Direct parent support: groups, 1:1, within TCHAP and throughout Ancillary services • Initiatives & policy setting with an emphasis on FCC principles

14. Monumental Task…..What family-support services looks like • Photo removed

15. Family Support Services

16. How did we do this? • Learned and used business speak to include family involvement in both care delivery and program/space development • Research and validate the need for change–example: • Direct cost savings • Increasing family satisfaction scores. • Make the pitch – selling family involvement to a high-level administrator • Started small, advertised successes, and promoted both staff and patient satisfaction.

17. Get input from a variety of sources. . . • Family Action (advisory) Councils • Teen or Youth Councils • Physicians • Nursing • RT / Speech / OT / PT • Child life, teachers, and navigators

18. S.W.O.T. Analysis: Strengths and Weaknesses A strength is something a company is good at doing or a characteristic that gives it an important edge • A skill or expertise • A valuable resource • An achievement that creates market advantage A weakness is something a company lacks or does poorly in comparison to its competition • Lack of skill or expertise • Poor track record • Lack of resources

19. S.W.O.T. Analysis: Opportunities and Threats An opportunityis a future situation that can positively change an organization: • Increase in demand for services or choice by families • Improved satisfaction scores • Saves money when continuity of care is woven through units and services where families have needs A threat is a present or emerging situation that can be hurt the company • Competition • Low satisfaction scores • Inability to attract staff due to satisfaction or advanced technology abilities.

20. Family-centered care:Business speak 101 Strength INTERNAL Weakness Threat Opportunity EXTERNAL

21. Photo removed

22. It’s your turn…… • S.W.O.T. analysis • Break into 2 groups • Brainstorm S.W.O.T. for YOUR organization on the following topics: • Kris: funding and getting established • Ted: recruiting and goal setting • Come back together with report out • Using worksheet, document good ideas for you to shamelessly use…..!

23. Get Creative – See the potential • Photo removed

24. Priority matrix tips • Bucket similar topics • Set expectation that majority rules with following voting tools: • Vote using single dot color – most votes win • Voting dot value: red, green, yellow • Thumbs up or down (yes or no)

25. Priority and Payoff Matrix high Jewels Tough or Risky Quick fixes Drop low easy difficult

26. Provided in packets today - • Worksheets to take back • Copy of by-laws • Goals and accomplishments of family action council • Promotional materials • Contact information

27. The Children’s Hospital at Providence 3200 Providence Drive • POB 196602 Anchorage, AK 99519 Kris Green 907-261-5895 (Phone) Kristine.green@providence.org