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Involving people with learning disabilities in research

Involving people with learning disabilities in research . Dr Kirsten Stalker Social Work Research Centre University of Stirling. Topic and methodology . Choice of research topic Participatory approaches conventional research relationships are inequitable

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Involving people with learning disabilities in research

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  1. Involving people with learning disabilities in research Dr Kirsten Stalker Social Work Research Centre University of Stirling

  2. Topic and methodology • Choice of research topic • Participatory approaches • conventional research relationships are inequitable • people have right to be consulted and involved in research affecting their lives

  3. Consent and Confidentiality • Agreement Forms • people with high support needs • what if people reveal harm? • some people want to be identified

  4. Relationships • unequal power - unfair exchange • risk of intrusion • expectations of continuing friendship • who sets the terms of engagement? • withdrawing at individual’s pace

  5. Analysis & Accountability • whose voice? • some people have less redress than others • Ethics of Representation (Booth) • respondent validation (Bloor)

  6. Dissemination • Accessible to participants • involves them in process

  7. Summary • Early days… and not so early days • Invite people to set their own terms and conditions • Document highs and lows, and seek participants’ views

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