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European Standards of Care for Newborn Health

European Standards of Care for Newborn Health. European Standards of Care for Newborn Health. About preterm birth Preterm birth at global &European levels and in our country How European Standards of Care for Newborn Health help to improve health outcomes

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European Standards of Care for Newborn Health

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  1. European Standards of Care forNewbornHealth

  2. European Standards of Care forNewbornHealth • Aboutpretermbirth • Pretermbirth at global &European levelsand in ourcountry • How European Standards of Care forNewbornHealthhelptoimprovehealthoutcomes • The European Standards of Care forNewbornHealth in a nutshell • Whatcanyou do?

  3. Aboutpretermbirth A babyisbornpreterm, whenitisborn before 37 weeksof pregnancy.

  4. Consequencesofpretermbirth • Health and developmental risks increase the earlier the baby is born • The use of evidence-based practices has been shown to improve survival without severe morbidities for very preterm babies • Not every preterm baby in Europe receives evidence-based treatment Chang HH, Larson J, Blencowe H, Spong CY, Howson CP, Cairns-Smith S, et al. Preventing preterm births: analysis of trends and potential reductions with interventions in 39 countries with very high human development index. The Lancet. 2013 Jan;381(9862):223–34. https://www.ncbi.nlm.nih.gov/pubmed/23158883 Euro-Peristat Project. European Perinatal Health Report. Core indicators of the health and care of pregnant women and babies in Europe in 2015. November 2018. Available at www.europeristat.com

  5. Reducingpretermbirth and itsconsequencesiscost-effective Economic consequences, that go beyond the direct expenses at birth: • Financial burden on healthcare insurance • Substantial financial burden on families(e.g. therapies, reduced working capacities) The highest rate of economic returns comes from the earliest investments in children Money spent to prevent preterm birth, birth complications and to improve the long-term health of affected children is a “Smart Investment” for the society Hodek, Jan-Marc, J-Matthias von der Schulenburg, und Thomas Mittendorf. „MeasuringEconomicConsequencesofPretermBirth - MethodologicalRecommendationsforthe Evaluation of Personal Burden on ChildrenandTheirCaregivers“. Health Economics Review 1, Nr. 1 (Dezember 2011): 6. https://doi.org/10.1186/2191-1991-1-6. Karen, T., A. Außerer, M. Krimbacher, S. Mader, und M. Keller. „1209 Socioeconomic Impact ofPretermBirth in Germany andAustria:A Parental Perspective“. Pediatric Research 68, Nr. S1 (1. November 2010): 599. https://doi.org/10.1203/00006450-201011001-01209. The HeckmanEquation. https://heckmanequation.org/resource/the-heckman-curve/

  6. Pretermbirth at global level Every year,15 million babies are born preterm, more than 1 baby in 10 Every year, 1 million babies die due to complications of preterm birth Preterm birth complications are the leading cause of death in children under five years of age In almost all countries with reliable preterm birth data, the number of preterm birth is rising Inequalities in survival rates and health outcomes are stark Three quarters of deaths could be saved and complications from preterm birth could be prevented with cost-effective interventions Global, regional, and national estimates of levels of preterm birth in 2014: a systematic review and modelling analysis  Source: Chawanpaiboon et al. 2014 Chawanpaiboon S, Vogel JP, Moller A-B, Lumbiganon P, Petzold M, Hogan D, u. a. Global, regional, and national estimatesoflevelsofpretermbirth in 2014: a systematic review and modellinganalysis. The Lancet Global Health. Januar 2019;7(1):e37–46. https://www.thelancet.com/journals/langlo/article/PIIS2214-109X(18)30451-0/fulltext WHO 2019: Data and statistics. https://www.who.int/news-room/fact-sheets/detail/preterm-birth

  7. Pretermbirth in Europe • Every year, about 500 000 babies are born preterm Every year, 40 000 familiesaretouchedbythelossoftheirbabybystillbirthordeath Preterm birth complications are the reason for about three quarters of all deaths in the neonatal period Wide differences in preterm birth rates: from less than 6% to 12% Policies and practices related to delivery of care within countries affect variations in the preterm birth rate There are huge disparities in survival and health outcome between the European countries Geographicaldistributionofpretermbirthsamong live births in Europe Source: Euro-Peristat Project. European Perinatal Health Report. Core indicators of the health and care of pregnant women and babies in Europe in 2015. November 2018. Available at www.europeristat.com Editorial. Putting the family at the centre of newborn health. The Lancet Child & Adolescent Health. 2019;3(1). https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(18)30369-9/fulltext Euro-Peristat Project. European Perinatal Health Report. Core indicators of the health and care of pregnant women and babies in Europe in 2015. November 2018. Available at www.europeristat.com

  8. European disparaties in organisation and provision of care for newborns Infrastructure for high-risk pregnancies Transport systems Organisation of medical centres Follow-up and continuing care Education of healthcare professionals Medical treatment NICU design Nutrition Level of implementation of infant- and family-centred care

  9. Pretermbirth in ourcountry Pleaseinsertyourdata! Please use this slide to highlight national data from your country: What is the current situation (rates, numbers) and what are the main current challenges?

  10. The threemainneeds in ourcountry Pleaseusethisslidetoinsertthethreemostpressingneeds in yourcountry Please use this slide to insert the three most pressing needs in your country

  11. European Standards of Care forNewbornHealthtoimprovehealthoutcomes Due to the lack of standards and respective guidelines, care strongly depends on medical routines of single hospitals or healthcare professionals on duty. Some of these are not even scientifically substantiated but have become unwritten rules within clinical routines In daily clinical practice, standards ensure access to the best possible care for as many patients as possible since they direct decision-making and reflect best scientific evidence as well as practice experience Although the use of evidence-based practices has been shown to improve survival without severe morbidities for very preterm babies, not every preterm baby in Europe receives evidence-base treatment Europe’s variations in health outcome among preterm and ill babies can only be overcome by providing harmonised definitions and clear regulations for infrastructures, medical processes, care procedures, and capabilities of staff, as well as quality indicators, allowing to compare and adjust the conditions of care Chang HH, Larson J, Blencowe H, Spong CY, Howson CP, Cairns-Smith S, et al. Preventing preterm births: analysis of trends and potential reductions with interventions in 39 countries with very high human development index. The Lancet. 2013 Jan;381(9862):223–34. https://www.ncbi.nlm.nih.gov/pubmed/23158883 Gissler M, Mohangoo AD, Blondel B, Chalmers J, Macfarlane A, GaizauskieneA, et al. Perinatal health monitoring in Europe: results from the EURO-PERISTAT project. Inform Health Soc Care. 2010 Mar;35(2):64–79. https://www.ncbi.nlm.nih.gov/pubmed/20726736 Hensen P. Versorgungsqualität und Patientensicherheit. In: Hensen P, editor. Qualitätsmanagement im Gesundheitswesen: Grundlagen für Studium und Praxis.Wiesbaden: Springer Fachmedien Wiesbaden; 2016. p. 367–99. https://doi.org/10.1007/978-3-658-07745-7_13

  12. European Standards of Care for Newborn Health in a nutshell • About 100 European reference standards forkeytopics in neonatalhealth • Eachcorestandardisbased on bestscientificevidenceandpracticeexperience • Additional sectionsintroduce initial stepstowardsthestandardandhighlighthowtodevelopfurther, beyondstandard • The European standards serveasreferencefordevelopment, implementationor update of national binding standards andguidelines • Indicatorsallowforverificationactivitiesandbenchmarking Special features: • Initiatedbypatientorganisation • About 220 experts from more than 30 countries are involved in the project and engage voluntarily Project website: www.newborn-health-standards.org

  13. European Standards of Care forNewbornHealthreceiveworldwidesupport Currently, more than 170 healthcare professional societies/organisations and parent organisations support the standards.

  14. European politicianssupportthe Standards of Care forNewbornHealth End of 2019, the European Standards of Care for Newborn Health were launched in the European Parliament in Brussels, Belgium, together with a European Call to Action for Newborn Health European politicianssupportthe European Standards of Care forNewbornHealthandthe European Call to Action forNewbornHealthwiththedemand that European and national policy makers, hospital administrators, insurers, professional and patient associations, and industry work together to bring the standards into  practice to ensure quality, equity, and dignity for the smallest

  15. Whatcanyou do?Commit toincreasenewbornhealthoutcome at European level Recognisethechallengeofpretermbirth in Europe and itssignificantimpact on mortality, long-term healthconsequencesandthehealth and social inequitieslinkedtoit Support andprioritiseequitableaccessto high-quality care andthedevelopment and implementationofcoordinatedEU health and socialpoliciesaswellas Support andprioritisethedevelopmentandimplementationof standards orguidelines in newbornhealth in yourcountry, withreferencetothe European Standards of Care forNewbornHealth Addressthe lack ofcomparable European data on pretermbirth and support thecreation and strengtheningofdatacollectionsystemsanddataregistries Prioritise and allocate EU fundingto promote coordinated European perinatal andneonatalresearch Support thedevelopmentof a European trainingprogramme in perinatologyandneonatology in ordertoincreasethequality and availabiltyoftrainedhealthcare professionals Use thisslideonlyforpoliticianswith a European connection/interest!

  16. Whatcanyou do?Commit toincreasenewbornhealthoutcome in ourcountry Recognisethechallengeofpretermbirth and itssignificantimpact on mortality, long-term healthconsequencesandthehealthandsocialinequitieslinkedtoit Support andprioritisethedevelopment and implementationof a targeted national neonatalpatientcentredhealthpolicy, andof national standards orguidelineswiththeinvolvementof all stakeholdersandreferencingtothe European Standards of Care forNewbornHealth Promote andsupportdevelopment and implementationoftargeted, evidence-basedpretermbirthpreventionprogrammes Promote andsupporttheprovisionofequitableaccessto high quality maternal and neonatal healthservices Increaseaccesstospecialised and appropriate follow-upandcontinuing care forpretermorillborninfants Addressthe lack ofcomprehensiveepidemiologicaldata on pretermbirthandsupportthecreationandstrengtheningofdatacollectionsystems Pleaseadaptthisslidefor national policymakers: Eitherselectamongthegivenexamples 3 to 5 recommendationsthataremostpressing in yourcountryoradd 3 to 5 ownrecommendationsthatprovide a solutiontothespecificneeds & challengesthatyouhighlighted at thebeginningofthispresentation.

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