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Jordan National New Born Screening Programme

Jordan National New Born Screening Programme. Dr Sana ’ A S Al Hait Department for Prevention of Genetic and Congenital Disorders Ministry of Health. البرنامج الأردني الوطني للمسح الطبي لحديثي الولادة. New Born Screening Team Ministry of Health. Dr Sana ’ Al Hait Dr Itidal Zaidan

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Jordan National New Born Screening Programme

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  1. Jordan National New Born Screening Programme Dr Sana’ A S Al Hait • Department for Prevention of Genetic and Congenital Disorders • Ministry of Health البرنامج الأردني الوطني للمسح الطبي لحديثي الولادة

  2. New Born Screening TeamMinistry of Health • Dr Sana’ Al Hait • Dr Itidal Zaidan • Dr Basem Zu’bi • Dr Raja’ Badarneh • Hind Othman • Nadia Aqrabawi • Ruzan Ie’layyan • Zainab Jazairi • Dr Mohammad Tarawneh • Dr Adel Bilbaisi

  3. Jordan Population : 6.5 million + Population Growth : 2.6 Annual Birth Rate : 150.2 thousand

  4. Pilot Screening for Hypothyroidism • 1980s -----1990s • Univ of Science & Technology • Royal Med Service • Ministry of Health • The private sector • 1986 – 1996 28291 Newborn 1 : 2174 • 1996 – 1998 15465 Newborn 1 : 1781

  5. Selective PKU Screening Screening affected families new borns &Their new born cousins 32 % Detected Neonatally

  6. Jordan New Born Screening Hypothyroidism HT Phenylketonuria PKU

  7. Hypothyroidism before & after treatment

  8. Neonatally Diagnosed PKU and PKU at Late Diagnosis

  9. Pilot Screening for HT & PKUMOH - WHO Pilot Stage • Ajloon + Zarqa • Apr 06 – Apr 07

  10. Pilot Screening ResultsApr 06 – Apr 07

  11. New Born Screening Training & Education June 2007 – June 2008 Voluntary Training Team 2 Drs 2 Lab tech 1 Nurse 1 Driver

  12. Country Wide New Born Screening Training & Education • Courses-------------------- 15 Theoretical + Practical • Health Directorates–--- 22 • Trained Drs--------------148 • Trained Nurses---------240

  13. Organization of Screening • Health Centres ----------- 157 • Focal Points----------------16 • Lab------------Prince Hamza Hosp Amman • Data Entry---------NCDD

  14. Jordan National New Born Screening A Free of Charge Primary Health Service Aug 2008

  15. Method • Heel prick • Filter paper • Dry blood spot • ELIZA ُ

  16. Screening ResultsApr 06 – Apr 09

  17. Screened Infants Age \ Days

  18. Challenges • Screening Coverage --- 3 Years --- 90 % • Screening Age --------- 3 – 7 Days • Diagnosis settled ------ 21 Days Not More • Other Management Centres • More screenable diseases --- 2 Years later ? • Residual Blood Spots – epidemiological info

  19. Conclusion • Jordan has implemented New Born Screening among the first countries in the Region • Continued Community wide health education required • Budget needed – Alert the Public - Mass Media • Incidence \ Sum over 3 years HT ----------- 1 : 1250 PKU----------- 1 : 4300

  20. Thank You

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