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Interfacing Registries with EHRs – Draft White Paper for AHRQ Patient Registries Handbook II

Interfacing Registries with EHRs – Draft White Paper for AHRQ Patient Registries Handbook II. Review and Discussion 09/30/2009. 2 main points. Distinct roles of registry and EHR Functional interoperability Years of work ahead of us. Definitions.

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Interfacing Registries with EHRs – Draft White Paper for AHRQ Patient Registries Handbook II

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  1. Interfacing Registries with EHRs – Draft White Paper for AHRQ Patient Registries Handbook II Review and Discussion 09/30/2009

  2. 2 main points • Distinct roles of registry and EHR • Functional interoperability • Years of work ahead of us

  3. Definitions • EHR: “An electronic record of health-related information on an individual that conforms to nationally recognized standards and that can be created, managed, and consulted by authorized clinicians and staff across more than one health care organization” • Individual focused, with the purpose of collecting, sharing, and using health information for the benefit of that individual

  4. Definitions • Registry: “An organized system that uses observational study methods to collect uniform clinical and other data to evaluate outcomes for a population defined by a particular disease, condition, or exposure, that serves one or more predetermined scientific, clinical or policy purpose” • Population focused, and designed to fulfill specific purposes

  5. Challenges • Widespread implementation of EHRs that can’t exchange data (i.e., not interoperable) • No common vocabulary • Non-centralized approach to creating data standardization • Multiple data capture systems being used in response to the above challenge • Requiring re-entering of data • Requiring more training, time, resources

  6. Challenges • “No current EHRs are fully interoperable in the core functions that would enable them to participate in the learning healthcare system that is envisioned by IOM” • Pre-interoperable environment

  7. Potential Solutions • Development of “building blocks” towards interoperability • Working incrementally, and building on success • Creating solutions that are “scalable to different platforms” • Using “open standards” • Common language

  8. End Goal • Functional Interoperability • “The ability of any EHR to exchange valid and useful information with any registry on behalf of any willing provider at any time in a manner that improves the efficiency of registry participation for the provider and patient and does not require significant customization to the EHR or the registry system” • Any EHR should be able to exchange data with any registry, and any registry should be able to exchange data with any EHR

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