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What We Can Learn

What We Can Learn. From. What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are coping with the same disease. AND THERE IS A LOT OF DATA!. Includes more than 1,200 different conditions Over 200,000 Users

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What We Can Learn

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  1. What We Can Learn From

  2. What is PatientsLikeMe.com? • A networking site in which patients can interact and share information with other patients who are coping with the same disease

  3. AND THERE IS A LOT OF DATA! • Includes more than 1,200 different conditions • Over 200,000 Users • Collects info. on treatment history, side effects, hospitalizations, symptoms, disease-specific functional scores, weight, mood, quality of life, etc… • Mentioned in more than 1,000 publications So how do they stay organized??

  4. Colors make for easy comparison Most common symp- toms I am a patient or researcher who is really interested in the anxiety that Crohn’s patients experience Click!

  5. A Study on Anxiety -Different Design -Same Point Most Popular Drug Treatment

  6. But is Clonazepam right for me? the who the how the why the what Nothing like shopping with all the answers!!!

  7. And The Personal read comments written by those that have already gone through the experience send other patients a private message and begin a discussion about the issues that are bothering you gain the sense that you are not alone

  8. Relevant To Us:The Doctor Visit Sheet • A PDF sheet for a patient to share with their doctor covering • measurements of QOL, history of symptoms as well as the different labs and tests that a patient has had -A noteworthy space saving technique that PatientsLikeMe uses is color coded line graphs.

  9. HAVE A GREAT WEEKENED ALL!!!

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