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Fibromyalgia Association UK

FIBROMYALGIA IN THE UK. Fibromyalgia Association UK. Fighting for Freedom from Fibromyalgia. www.fmauk.org. Fibromyalgia Association UK aims to:. increase awareness of FM lobby for speedy diagnosis lobby for effective treatment. Fighting for freedom from fibromyalgia. www.fmauk.org.

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Fibromyalgia Association UK

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  1. FIBROMYALGIA IN THE UK Fibromyalgia Association UK Fighting for Freedom from Fibromyalgia www.fmauk.org

  2. Fibromyalgia Association UK aims to: • increase awareness of FM • lobby for speedy diagnosis • lobby for effective treatment Fighting for freedom from fibromyalgia www.fmauk.org

  3. Fibromyalgia in the UKPatient survey involving over 500 people diagnosed with FM • time with symptoms, • diagnosis, • treatment, • co morbidities • satisfaction with treatment, • effect on quality of life Fighting for freedom from fibromyalgia www.fmauk.org

  4. Pain management Number of patients Fighting for freedom from fibromyalgia www.fmauk.org

  5. Treatments prescribed Fighting for freedom from fibromyalgia www.fmauk.org

  6. Therapies tried Fighting for freedom from fibromyalgia www.fmauk.org

  7. Medication results Fighting for freedom from fibromyalgia www.fmauk.org

  8. Non drug results Fighting for freedom from fibromyalgia www.fmauk.org

  9. Fighting for freedom from fibromyalgia www.fmauk.org

  10. Conclusions • Fibromyalgia is not effectively treated in the UK • No one treatment is effective for everyone Fighting for freedom from fibromyalgia www.fmauk.org

  11. What is the next step? NICE has timetabled 2016 to consider whether fibromyalgia should be considered for action.  Without data to show the extent of the problem, how can an accurate decision be made?  Information needs to be collected now to be ready for 2016, so that meaningful decisions and progress can be made on producing guidelines so that patients can benefit from a consistent service. Fighting for freedom from fibromyalgia www.fmauk.org

  12. Our ask of MPs • Request that data is collected of the number of people diagnosed with fibromyalgia • Request that NHS centres/commissioning boards are surveyed to show how many offer a multi-disciplinary approach to treating fibromyalgia Fighting for freedom from fibromyalgia www.fmauk.org

  13. Fibromyalgia Association UK www.fmauk.org

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