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Renal PatientView

Renal PatientView. Progress and plans. Evaluation Patients 95% very or quite valuable (65/30) Main reason for not using – not knowing Staff Equally positive Raises the level of consultation Better patient confidence, involvement. KPG forum comments

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Renal PatientView

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  1. Renal PatientView Progress and plans

  2. Evaluation • Patients • 95% very or quite valuable (65/30) • Main reason for not using – not knowing • Staff • Equally positive • Raises the level of consultation • Better patient confidence, involvement

  3. KPG forum comments RPV is amazing … I can instantly access my data and show it to my GP if I want to, it's really reassuring I am ever so jealous that my renal centre is not on RPV Excellent system ... although there is obviously the argument that providing nearly all the information from blood test results can be improved upon by actually providing all the information … 9/10!

  4. Fbk comments: transplant Thanks to the amazing NHS, RPV .... Bloods done 10.15 this morning.  All results posted on RPV by 3.30 - we are so lucky in the UK In my early weeks, I lived for my results on RPV.  Its an excellent system.

  5. Fbk: lost login

  6. Map Registrations • 17,000 Aug 2011 • In 50 renal units • +8 scheduled • and several working on it …

  7. www.renalpatientview.org

  8. Wide variation in uptake between units Up to 60% of RRT Over 40% in 9 units

  9. Recruitment Many patients still don’t know about it Personal recommendation is powerful It may not matter so much who does that A practical demo/intro has lasting benefits

  10. Recruitment toolkit www.rixg.org/rpv for hints and suggestions and links to YouTube videos

  11. What next? • Data back to units • Clinician enters • Timeline of drugs, treatment (from RR?) • Web entry • Primary care prescribing list (SCR/ECR)

  12. New data items in 2012 • FBC – add differential wbc • Lipids – LDL, HDL? • HepB, C, HIV, MRSA • PCR for CMV, BKV, HBV, HCV, EBV, HIV • T, P, RR, O2 sat (Apache score items) • ANCA, Complement, ANA/aDNA • (Units of measurement; deceased patients remove) • … new items for Radar

  13. What next? • Rare diseases • ‘RPV for all’ • Two-way communication

  14. renalpatientview.org Background, admin renal.org/rpv Recruitment rixg.org/rpv Technical rixg.org/developer News renalpatientview.blogspot.com neil.turner@ed.ac.uk www.edren.org

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