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Renal PatientView Sep 2008 Neil Turner

Renal PatientView. Renal PatientView Sep 2008 Neil Turner. www.renalpatientview.org. Renal PatientView. RIXG. Sample Proton screens. NHSnet. Renal server (e.g. Proton). Webserver. The world. Satellite unit. Other hospitals. Aug 2008 8000 patients 33 units. Renal PatientView.

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Renal PatientView Sep 2008 Neil Turner

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  1. Renal PatientView Renal PatientViewSep 2008Neil Turner

  2. www.renalpatientview.org

  3. Renal PatientView RIXG

  4. Sample Proton screens

  5. NHSnet Renal server (e.g. Proton) Webserver The world Satellite unit Other hospitals

  6. Aug 2008 8000 patients 33 units

  7. Renal PatientView • Design principles • Internet: view anywhere • Open source engineering • Specification by patients, renal IT staff and clinicians • All would share same view • Implementation to require minimal extra work in units • Simple to use for patients • Opt in

  8. Treatment choices

  9. Renal PatientView • Patient evaluation • In essence – extremely positive (details available) • Tests are the things looked at most frequently • 40% of patients have shared passwords with others and we know some are dependent on others for access

  10. Renal PatientView • Formal evaluation • Barriers to use • 64% non-users didn’t know of RPV • Gender profile same • 45% of non-users over 66yrs cf 10.5% • Lack of computer/internet access the second most common stated reason

  11. Renal PatientView • Impact on unit • Not leading to extra consultation time • Or to increased patient anxiety • Anecdotes of info availability helping patients beyond simple confidence • Some improved compliance? • Effect on data quality – direct and indirect • IT people speak to patients more

  12. Renal PatientView • Hidden cost? • RPV admin’s extra time • 6 mins per enrolment • Lost passwords • More corrections (a good thing though) • Versus savings • Fewer phone calls about results • Data quality • Better compliance with treatment?

  13. Renal PatientView • What next? • More units • More items • Graphics • Availability through other portals

  14. Renal PatientView • What next? • Patients discuss • Patients enter data • Patients send feedback to unit, clinician • Primary care integration • Your ideas

  15. Renal PatientView Beach scene [Caption competition] Further info neil.turner@ed.ac.uk www.renal.org/rixg/users.html

  16. neil.turner@ed.ac.uk www.edren.org

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