1 / 15

NICE Guidance – Service delivery for patients with Sarcomas

NICE Guidance – Service delivery for patients with Sarcomas. What are the key points?. National Institute of Clinical Excellence. What is NICE? How will the guidance work.

shellie-farmer
Download Presentation

NICE Guidance – Service delivery for patients with Sarcomas

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. NICE Guidance – Service delivery for patients with Sarcomas What are the key points? National Institute of Clinical Excellence

  2. What is NICE?How will the guidance work • NICE is a government body that determines the scientific and economic case for adopting a new therapy (it’s called rationing) • It is also involved in preparation and dissemination of guidelines • Service delivery is peer-reviewed so standards will generally be adhered to

  3. Background – current sarcoma care in UK • Late diagnosis (average size =10cm) • Uncertainty where to send patients • Lot of centres treating few patients • Variable adherence to protocols • Variable treatment quality

  4. Patients want to be more involved… • Identifiable keyworker • More information • Pre- referral (who they will see, tests, times etc) • At referral – written information to take away • Post referral – to be able to mull over things

  5. Diagnostic pathway • Streamlined • Diagnostic centres – managed by networks in conjunction with comprehensive treatment centres - lot of options available • All biopsies seen by experienced pathologist • Early radiology review for ‘suspicious’ bones

  6. Pathology • Ideally no pathologist in isolation • Quality approved (system already in place) • Formal links with others • Training needs • National tissue resource

  7. Multidisciplinary Team (MDT) • All sarcoma patients must be managed by a MDT • Minimum workload 100 new STS / yr, 50 new primary bone (or 100 bone) • Why ? Critical mass needed for experience

  8. Core members • 2 of everything (Surg/path/radiol/oncol) • Keyworker • MDT co-ordinator + secretary

  9. Extended members • Paediatric Oncology • Plastics / Chest / GI / ENT • Physiotherapy • Palliative care

  10. Process • Meet weekly • Discuss and document all new cases • Diagnostic + treatment facilities • Data / Trials / Audit (national) /Information etc

  11. Who can give CT + RT? • Nominated units • Participate in trials • Age related facilities • Experience with sarcomas

  12. Rehab + Follow up • Involve patients • Keyworker responsible for liasing

  13. Audit etc • National audit (? Amp rate, LR rate etc) • Minimum data set mandatory • Research incl tissue storage essential • Training for all needed

  14. Advantages • Clear patient pathway • Treated by experienced MDT • Data collection and audit • Research • Better outcomes?

  15. Summary • Rapid referral to diagnostic centre and on to treatment centre • Treatment centres agree and adhere to protocols, trials etc • Less people treat more patients • ? Improved outcomes !

More Related