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Helen Gowland. Chair Person Tayside Speakeasy Aphasia Self Help (affiliated to Speakability). Laorag Hunter. Speech and Language Therapist NHS Tayside. Aphasia A communication impairment. “ay-fay-zee-ah”. Aphasia Difficulty using and understanding spoken and written language.
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HelenGowland Chair Person Tayside Speakeasy Aphasia Self Help (affiliated to Speakability) Laorag Hunter Speech and Language Therapist NHS Tayside
Aphasia A communication impairment “ay-fay-zee-ah”
Aphasia Difficulty using and understanding spoken and written language
Aphasia Common after stroke, brain injury and some brain illnesses
Everyone with aphasia has their own unique pattern
Aphasia • 20,000 people develop aphasia every year • 50% of people have aphasia 18 months after it starts • 250,000 people in UK • Changes with communication can be life-long
1999 • 44 years old • 3 girls • Husband • Elderly parents • Part time specialist physio • Committee work • Enjoying life
Out Of The Blue • April 1999 • Aneurysm ruptured followed by stroke • Emergency brain surgery
Epilepsy Aphasia Changes in vision Balance Work Driving Family Hobbies Impact on Me Devastation
2010 • 55 years old • 3 girls, sons-in-law, boyfriends • Husband • Elderly parents • Part time work Oxfam • Committee work (local and national) • 2 dogs • Cooking • Enjoying life
Living Successfully with Aphasia (Brown et al 2010) • Communication • Doing things • Meaningful relationships • Striving for a positive way of life
Living Successfully with Aphasia (Brown et al 2010) • Communication • Doing things • Meaningful relationships • Striving for a positive way of life
Ask yourself… • If I had difficulty understanding what would help? • If I had difficulty telling by speech what would help? • If I had difficulty reading what would help? • If I had difficulty telling by writing what would help?
Aphasia Friendly • Don’t use a big word if a small word will do Don’t use unusual vocabulary Don’t use unusual words
Aphasia Friendly • Use simple sentences “I am writing to inform you that garage charges will increase on 1st March from £25 per calendar month to £28” “Garage charges rise on 1st March to £28”
Aphasia Friendly • Large Print
Aphasia Friendly • More white space
Aphasia Friendly • Key words in colour
Aphasia Friendly • Include carefully selected images or symbols
Aphasia Friendly • If you need a reply, include addressed envelopes
Aphasia Friendly • Option for face to face help
Aphasia Friendly • Time to understand and to answer
Aphasia Friendly • Repeat important points
Aphasia Friendly • Simple words • Simple sentences • Large print • More white space • Key words in colour • Use of carefully selected pictures/symbols • Pre-printed envelopes • Option for face to face help • Plenty of time • Repetition
For example The next working group will be visiting the Scottish Parliament. You will need to bring bus pass, money for coffee and a packed lunch. There will be an opportunity to take photographs.
Stroke Research Tells Us… • Language function continues to improve over DECADES(Ambridge et al 2010)
People with aphasia tell us… • This requires PRACTICE PRACTICE PRACTICE
Speech Therapy • Helps me to get new words 10 years on • Practise on my own at home with a communication aid • I am improving all the time • Feel positive
Living Successfully with Aphasia (Brown et al 2010) • Communication • Doing things • Meaningful relationships • Striving for a positive way of life