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AD Genetics Study Recruitment

AD Genetics Study Recruitment. Patricia D. Lynch, MA, MS, MAPS National Institute on Aging. AD Genetics Study. Nationwide study, recruiting 1,000 families with at least 2 siblings with late-onset AD Partnership with Alzheimer’s Association. Recruitment Challenges.

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AD Genetics Study Recruitment

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  1. AD Genetics Study Recruitment Patricia D. Lynch, MA, MS, MAPS National Institute on Aging

  2. AD Genetics Study • Nationwide study, recruiting 1,000 families with at least 2 siblings with late-onset AD • Partnership with Alzheimer’s Association

  3. Recruitment Challenges • Anticipate having to do broad outreach to get sufficient number of eligible families • Conducted focus groups to discuss barriers & incentives • Developed materials to support national recruitment effort

  4. Recruitment Tool Kit • Basic recruitment manual • Brochure & family talking points flyer • PowerPoint presentationnot a lecture on genetics, a recruitment presentation • Templates for materials to customize for local use:flyer, letters, news release, ads, PSAs, etc. • Background materials • CD with electronic versions of materials

  5. Collaboration with Alzheimer’s Association Chapters • Partnership with Association -joint news release -talks to Association leadership & members -support for focus groups • Tool kits will also be distributed to chapters • AD awareness month activities • Other opportunities to partner

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