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Future plans NMCN CEN

29 September 2010 Glasgow. Future plans NMCN CEN. Future projects as prioritised by Steering and Working groups: Pathway of care: Implementation Audit how useful the information of the pathway is Audit if the time periods in the timeline are achievable/not achievable and why?

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Future plans NMCN CEN

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  1. 29 September 2010 Glasgow Future plans NMCN CEN

  2. Future projects as prioritised by Steering and Working groups: • Pathway of care: • Implementation • Audit how useful the information of the pathway is • Audit if the time periods in the timeline are achievable/not achievable and why? • Add new documents and incorporate feedback on documents • Use of care co-ordination/GIRFEC • Ongoing development of awareness of emotional impact of tube feeding: • - Leaflet on the emotional impact of tube feeding to provide information for parents and professionals available by end 2010 • Discussing the need for hands-on training to make professionals more confident to raise the emotional issues with parents • - Raise awareness of DVD and reflective questions

  3. Future projects: • 3. Acute care: • Audit parents experiences with Acute Care at A&E, NHS24 and Out of Hours Services through interviews and questionnaires • Discuss Acute care with professionals in A&E, NHS24 and Out of Hours Services in meetings across Scotland • Discuss the use of Emergency Care Summary and ePalliative Care Screen • 4. Data collection: • Link with regional groups across Scotland to get accurate numbers of children meeting the exceptional healthcare needs • Achieve national data collection permissions • Audit the number and reasons for hospital admissions of children with exceptional healthcare needs across Scotland

  4. Future projects: • 5. Clinical Quality Indicators: • Discuss and agree the NMCN CEN Clinical Quality Indicators by the end of 2010 • Preliminary list of Clinical Quality Indicators: • - Percentage of children who meet the exceptional healthcare needs criteria registered on SNS or local databases kept in collaboration with NMCN CEN • - Percentage of children who have a keyworker or lead professional • Percentage of children having regular MDT reviews • - Percentage of children who meet the CEN criteria with low numbers of hospital admissions • Percentage of children who are discharged from hospital within 8 months after identification of their exceptional healthcare needs • Percentage of parents reporting that they received emotional support when their child changed to tube feeding

  5. Next Conference NMCN CEN: Preliminary date: 8 September 2011 Perth/Dundee www.cen.scot.nhs.uk

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