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Learn about a study on Deaf/Hard of Hearing children in Hawaii identified through Newborn Hearing Screening in 2005. Understand their communication, cognitive, and social/emotional status, and service history related to their hearing loss. Data includes demographics, service history, and child development. Discover the study's goals, process, and current status to gain insights into early hearing detection and intervention for children in Hawaii.
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WHERE ARE THEY NOW:Children who are Deaf or Hard of Hearing Identified by Newborn Hearing Screening in Hawai`i 2005 Early Hearing Detection and Intervention Conference Atlanta, GA; March 4, 2005 Beppie J. Shapiro, Ph.D. and Taletha M. Derrington, M.A. Center on Disability Studies, College of Education, University of Hawai`i beppie@hawaii.edu, taletha@hawaii.edu
Presentation Outline • Description of Study • Initial data • Discussion
Hawai`i Follow-Up Study of Children with Congenital Hearing Loss • Goal: Describe communication, cognitive and social/emotional status and service history • Relate to type and degree of hearing loss • Collect demographic and family information
Study Eligibility • Born 1992-1998 • Permanent congenital hearing loss • Lived continuously in Hawai`i • Co-occurring disabilities do not preclude assessment
Funding - CDC & HI DOH IRB approvals Recruitment and consents Parent completes questionnaires & signs releases Send record abstracts to providers Determine eligibility Assess communication, cognitive and social/emotional as necessary Study Process
Current Study Status • 50 potentially eligible children enrolled • Information from 147 providers obtained • Initial data for NHS-identified children entered in database
Child Demographics Ethnicity
Child Demographics Birth Year • Mean age upon study entry 6.9 years (range 4.6-10.4, SD 1.8) • 7 girls, 15 boys
Family Demographics • Mean household income 184% FPL (range 55-300%, SD 81%) • Mean age of mother at birth of child 32 yrs. (range 16-42, SD 6.6) Mother’s Education Parents’ Language
Parent Report: How Loss Was Identified • Mean age of identification reported by parent was 9 months (range 0-72, SD 18 mo) • One child had a family history of hearing loss
Child Service History • 36% use hearing aids; no cochlear implants • Mean age of amplification 27 mo (range 2-72, SD 29) • Mean percent of the time child wears aid 65% (range 25-100%, SD 29%) • Three children use aids only at school
82% were enrolled in EI Mean age at first intervention 1.5 yrs. (range 0-4.75, SD 1.36) Mean length of enrollment in EI 1.8 yrs. (range 0-3, SD 0.89) 86% attended preschool at ages 3-4 86% currently attend public schools, 14% attend private schools Child Service History
Child Development • 95% communicate in spoken English; one child primarily uses ASL • 18% had other developmental delays (cognitive, fine motor, gross motor)
Discussion What questions do you have?