Welcome to our first PPG Chairs event

Welcome to our first PPG Chairs event Chaired by Bill Mackay - Interim Patient Participation Group Representative Litsa Worrall – Interim Patient Participation Group Representative

Today’s agenda • Welcome and feedback from the last meeting (you said, we did) • Explaining the role of CCGs and the new NHS system • How Enfield CCG wants to work with PPGs • Locality working in Enfield • Group work including your feedback on how we can support you to work together • An update from NHS England on care.data • How PPGs are involved in CQC inspections • Training, future meetings and any other business

What happened at our last event? • On 5 February 2014 we held our first PPG event and invited everyone in Enfield who is a member of a PPG. • 26 PPG members attended representing 14 practices from across Enfield. • A short report from the inaugural meeting of PPG members is in your pack. • As requested our next all PPG members meeting will be in September. We would be grateful for your suggestions on days/times/venues • We would also like you to suggest how often you would like to meet, for how long and how you would like to work together between meetings.

You said………we did! You said: You would like a Chairs event in about 3 months time and another all PPG members event in about six months time We did: Today is our first Chairs event and we would like you to suggest topics for an all PPG members event in September You said: You wanted to be able to feedback to the CCG on issues that your PPG comes across that are outside of your GP practice. We showed you a draft form we have developed for you to feedback to the CCG. You generally gave positive comments on the form. We did: We have brought the form back to the Chairs meeting today for final approval. We have also set up a new email address just for you to send us feedback – ppgs@enfieldccg.nhs.uk You said: You were interested in having some training. Some of you are experienced chairs and other people felt they might like additional training. We did: We have found a training session provided by Enfield Voluntary Action that we would like your views on (details of the course are in your pack) If you would like to take part in this training, we will book a special session just for PPGs. The dates available are 12 June AM and/or 17 June AM or PM

You said…………..we did! You said: You wanted to find out more about the CCG and the new NHS We did: We are going to be doing another quick presentation on this today and we are happy to answer questions at any time. We have also brought copies of our Prospectus from last financial year. We are going to be updating this in June and would love to hear your views on how we could improve it! Please share it with your groups and send us comments. You said: You would like to hear from guest speakers and also for us to arrange guest speakers for you. We did: Today we are welcoming Robin Burgess from NHS England as our first guest speaker! We haven’t had any requests from any individual PPGs yet but we are happy to hear from you. We also are pleased to share an invitation with you on behalf of Latymer Road practice who would like to invite you and your group members to their next patient talk on Dementia. We will share further details with you soon. You said: You would like your own section on the CCG’s website. We did: We have started a new section for you and are exploring how we can make it interactive for you. We welcome your views and help developing this.

You said…………..we did! You said: You wanted to find out more about NHS developments We did: We would like to ensure that you know that the CCG has three public events a year where we talk about the main local developments. Our next event is on 10 June and everyone is welcome. We will also send you other invitations or news from other NHS partners if we think this would be interesting for you. You said: You would like help marketing and promoting your groups We did: We are working on a marketing toolkit for you. If anyone here has any hints and tips they would like to share please let us know. We are also encouraging patients to join PPGs by contacting their practice. You said: You would like help networking and sharing best practice We did: We hope this event will help with this. We want to develop the network and the way we work with you. We would like your advice on how many events you would like and we will try to design events that enable you to network better together. From these events the CCG can also build up a contacts database so we can write to you. You could also agree to share contact details directly with each other.

Special announcement! We are pleased to announce that we are in the process of purchasing membership of the National Association of Patient Participation Groups (N.A.A.P.) for every GP practice in Enfield. The CCG will also become a corporate member. http://www.napp.org.uk N.A.P.P. is a registered charity and the only national umbrella organisation for PPGs. N.A.P.P. was formed in 1978 by Patient Participation Groups (PPGs) that wanted to network together nationally and to promote patient participation within GP surgeries. We have bought every practice membership so that you can benefit from help and support from N.A.P.P. individually and we can collectively work together on their toolkits. We have paid an annual membership fee and we welcome your feedback on the resources N.A.P.P. provides as we will want to audit whether we should continue with this membership. There is more information on N.A.P.P. in your packs and a letter will be going out to your practices shortly. We will copy this to you if you share your email address with us.

King’s Fund video “An alternative guide to the NHS in England.” http://www.kingsfund.org.uk/projects/nhs-65/alternative-guide-new-nhs-england

The role of CCGs • CCGs are led by GPs and are intended to improve clinical leadership and patient involvement in commissioning. • Every GP practice is a member of a CCG and has signed up to our constitution. The CCG constitution is available on our website: http://www.enfieldccg.nhs.uk/Downloads/Policies/Enfield%20CCG%20Constitution%2031.03.2013.pdf • Enfield CCG plans and buys health services for patients including: • planned hospital care such as outpatients appointments and operations, • mental health services • continuing healthcare • urgent and emergency care servicessuch as GP Out of Hours, 111, urgent care centres and A&E • end of life care • community services • prescribing and • learning disability services. • We also work closely with partners such as Enfield Council, NHS organisations and the voluntary sector to plan a joined up systems of care.

What are patient participation groups? • A PPG is a group of patients who are interested in health and healthcare issues and who want to get involved in and support the running of their GP practice. • The National Association for Patient Participation (NAPP) describes a patient participation group (PPG) as a group of people who: “…..work with their practices to provide practical support, to help patients to take more responsibility for their own health and to provide strategic input and advice. They are based on cooperation between the practice staff and patients. They help to improve communication.” • Most groups also include practice staff and meet at regular intervals to discuss how to improve services for local patients. • Some groups in Enfield are chaired by patients, some by practice managers. • We know that our PPGs meet at different intervals and some meet face-to-face while others are virtual groups. • Currently we have 48 PPGs in Enfield. We would like all our GP practices to have a PPG and we are supporting them to achieve this.

Why we want to develop a new network for Patient Participation Groups (PPG) • We are a membership organisation, and we want to extend the concept of membership to patients • We see PPGs as an good way of engaging with patients in our member practices • PPGs have the potential to become an active network that can give valuable feedback to the CCG on the services it currently commissions and new services it intends to commission. • We want PPGs to help improve the quality of primary care by sharing best practice and work in positive partnership with practices • Where we have roles for patient representatives, we would like to increasingly recruit people from PPGs. • The CCG is supporting the PPGs to network together and design their own engagement structure. • In the future we want would like to empower the PPGs to work in localities as well as a borough wide network. • Our constitution states that we can co-opt an elected patient representative from our PPGs. • But we cannot run an election process in 2013 as not all GP practices have PPGs. • We have recruited two interim PPG representative posts will help us to ensure that we can deliver better patient representation to our committees and our Governing Body while our PPGs develop.

The role of interim PPG representatives • Two interim PPG posts. Both attend Governing Body meetings in public and the CCG’s patient and public engagement committee which is a sub- committee of the Board. • So far influenced development of Communications and Engagement Strategy, Equality and Diversity Strategy as well as helping to develop other key initiatives. • The posts are being developed in partnership so that in November 2014 we can develop new role descriptions for four elected and selected representatives, one of whom will sit on the Governing Body. • We think we are the only CCG in England to be preparing for an elected and selected post to be added to our Governing Body and this will strengthen the CCG’s commitment to patient engagement. CCG Governing Body Patient and Public Engagement Committee PPG Chairs 4 locality PPG groups or one network

How we are engaging with patients in Enfield PPG network Public engagement We have a duty to involve patients in the work of the CCG. One of the key ways we do this is to hold three public events a year around our commissioning cycle Our next event is 10 June 1:15-5pm at the Banqueting Suite, Forty Hall. All PPG members are welcome but these events have a more general focus. We also involve patients in projects and other work we are doing. We might ask you to: comment on a document we are working on, join a project group, fill in a survey. We also share invitations that other NHS organisations extend to our patients such as events or public involvement opportunities. • We are co-designing a PPG network with you • We want all our member practices to have PPGs. We see PPGs as critical friends who can help GPs and the CCG improve the quality of local primary care services • We want the PPG network to collaborate and share best practice Elected PPG representatives All PPG members PPG Chairs

Tell us about your patient participation group • How long has your group been established? • How many members do you have in your PPG? • How do you recruit members • How often do you meet? • Do you set your own agenda? • What types of topics do you discuss? • Would you like to have guest speakers or suggested topics to discuss? The CCG could help with this. • Would you like to work with other groups either locally or across Enfield?

About Enfield • Coterminous with Enfield Council • 3 main local NHS providers: Barnet, Enfield and Haringey Mental Health Trust Barnet and Chase Farm Hospitals North Middlesex University Hospital • Population 2012: 312,000 (source: ONS) • Ethnically diverse: 154 languages spoken in Enfield schools and largest Greek and Turkish Cypriot population outside of Cyprus. • The top five languages spoken by Enfield school pupils apart from English in 2012, were Turkish, Somali, Bengali, French and Albanian • 51 GP practices

Our health challenges • Between 2008-2010 our infant mortality rate was the third highest in London • Immunisation rates are still below the national average and the levels required to prevent outbreaks of disease • Childhood obesity rates are amongst the highest in the country • Cardiovascular disease and cancers remain our biggest killers and survival rates are lower than neighbouring boroughs • 1 in 3 adults in Enfield over 55 have a limiting long term illness • There is a large gap in life expectancy in Enfield, greater for women than men • People in the more deprived parts of the Borough tend to experience worse health than the rest of the population Female life expectancy in Enfield Male life expectancy in Enfield

Group work

Let’s talk about • What’s working • What could work better • Three things your PPG has achieved that you are proud of. • How could we help you to share best practice? • How can we support PPG Chairs?

Designing the Chairs network • Tell us three things that network working would help you do. • Tell us three issues that you might like to keep just to within your practice. • Would you prefer to work in four localities or across Enfield? We could start as an Enfield network and build towards having four that meet together as one annually. • How could we further support your PPGs to grow and develop?

NHS England Welcome to Robin Burgess from NHS England to speak to us about care.data

CQC visits The Care Quality Commission register and regulate GP practices. They check services to make sure they meet national standards of quality and safety and a central part of this is listening to the views of people who use the service, including working in partnership with PPGs. • A guide for working together – The Care Quality Commission and patient participation groups. The guide also includes examples of PPG activities which may help CQC inspectors make judgements. http://www.cqc.org.uk/sites/default/files/media/documents/20130509_cqc_guide_for_ppgs_final.pdfQuestions on the guide can be sent to enquiries@cqc.org.uk • CQC consultation on they we regulate and inspect services http://www.cqc.org.uk/public/get-involved/consultations/consultation-how-we-regulate-inspect-and-rate-services

PPG awareness week N.A.P.P. Patient Participation Awareness Week runs from 1 7 June 2014 near you promoting the role and benefits of PPGs to patients, the public and health professionals. We have printed a copy of the marketing pack for you.

Questions?

Thank you for attending today’s event!We will email you the documents so please make sure you have completed a feedback form and left us your contact details.In the meantime any further questions or feedback you have can be sent to:ppgs@enfieldccg.nhs.ukor call Laura Andrews on 0203 688 2840

Welcome to our first PPG Chairs event