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GLRSN ORIENTATION

GLRSN ORIENTATION. May 14, 2009 Angela Bray Hedworth, MS, RHEd, CHES, Program Manager/GLRSN. HISTORY. HDSP Programs collaborated over 25 years. Initially funded in 2004, refunded in 2007. Current funding ends on June 30, 2010. . Initial meeting of the GLRSN in February, 2005. .

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GLRSN ORIENTATION

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  1. GLRSN ORIENTATION May 14, 2009 Angela Bray Hedworth, MS, RHEd, CHES, Program Manager/GLRSN

  2. HISTORY • HDSP Programs collaborated over 25 years. • Initially funded in 2004, refunded in 2007. • Current funding ends on June 30, 2010. Initial meeting of the GLRSN in February, 2005. GLRSN Meeting 2008

  3. MISSION • Reduce the burden of stroke and disparities within Great Lakes regional states by optimizing coordination and collaboration. • Priorities: • EMS Notification and Response • Evaluation and Surveillance • Quality of Care

  4. How We Carry Out Our Mission • State Advisory Board • Work Groups • EMS Notification & Response • Evaluation/Surveillance • Quality of Care • State Stroke Task Forces • Clinical Advisory Team • Policy and Procedure Guide

  5. GLRSN STRUCTURE UIC/GLRSN Staff Angela Hedworth Effective 07/01/08

  6. RECENT PROJECTS

  7. Great Lakes Stroke Network Strategic Map: 2009-2011 Make Vital Contributions to Reducing the Burden of Stroke Expand Network Engagement and Increase Support Foster Key Stroke System Level Changes Secure and Leverage Required Resources Increase and Demonstrate the Unique Value of the Network Promote Public/Provider Education on Signs, Symptoms and 911 Increase Number of Network Participants and Partners Support Uniform Network Epidemiology and Surveillance System Expand and Diversify Network Funding Provide Technical Assistance to Improve EMS Stroke Response Increase Task Force Engagement in Implementation of Strategic Plan Develop the Network’s Brand Enhance Communication within the Network and with Outside Partners Facilitate Efforts to Improve Quality of Care Increase the Use of Expertise Within and Across Stroke Networks Engage Key Stakeholders and Champions Build Primary Data Collection Within the Network Support and Facilitate Effective Stroke Rehabilitation Educate Policy Makers Using Key Partners Expand Range and Types of Partner Contributions Foster Expanded Use of Telemedicine Improve Secondary Prevention by Integrating Across Chronic Diseases

  8. The Burden of Stroke in the Great Lakes States • Released in January 2006, updated 2008. • 2007 Stroke Atlas

  9. Upcoming Rural Stroke Systems of Care, June 11, 2009 Approaches to Dysphagia, August 13 Maximizing Opportunities for tPA, October 8, 2009 Stroke Care Neurosurgery, December 10, 2009 Quality of Care Calls

  10. Received Heart Healthy Stroke Free Award in 2009 Created regional stroke plan and 2 strategic maps Created a stroke rehabilitation regional inventory tool, collected data, creating report. Website (http://glrsn.uic.edu) Monthly Wave Inventory of state stroke data sources Partnered with NSA on Regional Stroke Meeting in 2006 and 2008. Data Exchange 2007 & 2008. Promotional Brochure, FAQ sheet, other promotional materials. Burden Documents, Stroke Atlas & state stroke fact sheets Partnering with Professional Sports How to Guide Compilation of available Stroke Education Materials, Stroke Media campaigns, evidence based guidelines Quality of Care calls reaching over 3500 people. Over 440 people on listserv glrsn@listserv.uic.edu A SAMPLING OF SUCCESSES

  11. 2008-2009 INITIATIVES • Telemedicine Feasibility Study • Partnership evaluation “Stories from the Field” • Quality of Care Calls • State Fact Sheets • Stroke Rehabilitation Inventory • Dysphagia workgroup

  12. 2009 – 2010 INITIATIVES • Continuing Quality of Care calls • Collaborate with PCNASR • Develop online registration system • Discharge Planning/Rehabilitation Project • Rural Health/Critical Access Hospital Initiative • Dysphagia Screening Project • Patient Education Project • ASLS Training for EMS • GIS Mapping Projects/Epidemiology Partnership • Disparity Analysis

  13. WHAT CAN YOU DO? • Write letter of support • Respond to listserv questions • Share success stories • Complete evaluations • Share resources, conferences, etc. • Share pictures • Promote GLRSN calls and materials

  14. AWARD WINNER • In 2009, the GLRSN was awarded the Heart Healthy Stroke Free award by the National Forum for Heart Disease and Stroke Prevention.

  15. State Contacts Illinois - Michael Gaines, MPA Indiana – TBD Michigan – Rochelle Hurst, RN, MS Minnesota – Stan Shanedling, PhD, MPH Ohio – Barbara Pryor, MS, RD, LD Wisconsin – Fred Petillo, MBA Program Contact Angela Bray Hedworth, MS, CHES, RHEd Program Manager Phone (312) 355-5423 or hedworth@uic.edu. http://glrsn.uic.edu

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