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Shared Decision Making: 2011 Overview and Role in Depression Care November 3, 2011 Ruby Spicer, MPH, RN. Shared Decision Making Defined. A Shared Decision Making (SDM) process results in medical decisions that are: Shared by doctors and patients
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Shared Decision Making: 2011 Overview and Role in Depression CareNovember 3, 2011Ruby Spicer, MPH, RN
Shared Decision Making Defined A Shared Decision Making (SDM) process results in medical decisions that are: • Shared by doctors and patients • Informed by the best evidence available about alternative treatments • Weighted according to the specific needs, preferences and values of the patient (Légaré et al., 2006)
SDM Defined, cont. • Appropriate when there is more than one evidence-based option, or when evidence isn’t clear about the best option • Preference-sensitive conditions: knee replacement, BPH, early breast cancer, depression • Cancer screening • Chronic conditions (decisions about self-care) • Advance care planning
SDM Background: Dartmouth • Jack Wennberg, MD: Unwarranted variations • Effective care • Supply sensitive care • Preference sensitive care
Dartmouth Atlas: “Geography is destiny” Percent enrolled in hospice during last six months of life, 2003-2007
Dartmouth Atlas, cont. How often did hospital staff explain medications to patients? 2003-2007
SDM: A means of reducing unwarranted variation • “The right rate” is the rate at which well-informed patients choose any procedure, test, etc. • Jack Wennberg co-founds Foundation for Informed Medical Decision Making, 1988 • First decision aids from FIMDM • inform patients about known benefits and harms of specific procedures • elicit patient values and preferences
2008: Growing National Interest in SDM • SDM research: clearly “the right thing to do,” and potential cost-saver • 2007 Cochrane review: avg. 24% reduction in choice of elective surgery after SDM (BPH, knee replacement, spine, etc.) • Better patient-provider communication; focused visits; more participation and “decision comfort” • MAY lead to better care plan adherence, better outcomes; mixed and limited evidence • From research to practice • 2007: WA demonstration requires DAs before hip, knee replacement; legal protection for physicians
So…What is SDMin practice? • In 2011, there is disagreement • Experts agree that SDM ideally involves: • Decision aid (print, video, online), used outside or during clinical encounter • Does more than provide information! • Decision support to help patient “process” decision aid, move closer to decision • Staff type may vary • Closing the loop with primary care provider
Decision Aids • Patient-based types: Healthwise, FIMDM • Health literacy, patient motivation may be issues
Decision aids, cont. • Encounter-based types (e.g., Mayo Clinic diabetes cards) combine clinical information with decision support • More resource-intensive, especially when used by providers
Origins of SDM at MaineHealth • 1998-2008: • Learning Resource Center had offered a range of decision aids, but never used systematically • Physician researchers just beginning to study specific decision aids (breast CA, prostate CA, menopause) • 2009: Grant from Foundation for Informed Medical Decision Making funds demonstration projects introducing DAs into routine primary care
MaineHealth: SDM in Primary Care, 2009-present • Five primary care, two employee health sites offering FIMDM DAs by Sept. 2010 • DA selection varies • Most chose diabetes, colorectal CA screening, PSA screening, depression, acute or chronic low back pain • Clinical workflows differ • Some mail DAs before visits; some give or mail after visits; some give between • Varying degrees of follow-up
Patient data, cont. • Depression: • 6 out of 70 surveys returned • 17 out of 440 decision aids given • Why so few? • Many practices interested in depression DA due to work with PHQ-9, mental health integration • Unsure how to integrate DA into workflow
Depression and SDM • A preference-sensitive condition • Choice of medication, psychotherapy, self-care, or combination • If not severe, watchful waiting • Improved patient engagement likely to improve treatment adherence and outcomes (and other health outcomes?) • Two prominent decision aids • Healthwise: electronic format • FIMDM: DVD-based; features patient stories
Healthwise: Should I take an antidepressant? http://www.mainehealth.com/healthinformation.cfm?xyzpdqabc=0&id=2872&action=detail&AEProductID=HW_Knowledgebase&AEArticleID=ty6745#zx3770 • Get the Facts; Compare Options • Your Feelings • Your Decision • Quiz Summary • Can be printed for review with clinician • In the future, may become part of patient record
Healthwise: Should I take an antidepressant? Discussion • What did you like, and not like? • What are opportunities, challenges for use in practice?
FIMDM: Coping with symptoms of depression Introduction(Chapter 3 to 4:45)
FIMDM: Coping with symptoms of depression Discussion: • What did you like, and not like?
FIMDM: Coping with symptoms of depression • How do I feel better?(10:42; 2.5 mins.) • Self help/watchful waiting (13:47-17:15; 3.5 mins.) • Antidepressant medications (17:16-19:33; 2.25 mins.) • Counseling (22:30-26:00; 3.5 mins.) • Looking forward(28:50-32:20; 3.5 mins.)
FIMDM: Coping with symptoms of depression Discussion: • What did you like, and not like? • What are opportunities, challenges for use in practice?
MaineHealth: Depression DA workflow questions • Which patients should receive DAs? • If based on PHQ-9 score, which range? • Should patients currently using antidepressants revisit decisions? • Automatic distribution, vs. “hand picking” of patients? • What will trigger distribution, and who will offer the DA? (provider, behavioralist, RN care manager?) • What will follow-up look like?
Depression workflow: Practice #1 • Eligibility: new or current patient with depression dx with PHQ-9 score 10-19 • Medication and psychotherapy equally effective • 10-14 score includes watchful waiting option • 20+ not appropriate; Rx is indicated • Patient flagged prior to appt.; DA placed in box outside exam room • Follow-up unclear • Patient may leave office without treatment plan • No fixed interval until next visit or contact
Lessons learned: Practice #1 • Providers offer DAs only to “right patients” • Providers report high rates of patient decline • Providers are concerned about team approach; difficulty involving care managers, health educator • Practice decided to select new decision aids rather than address perceived barriers; why?
Depression workflow: Practice #2 • International, vulnerable patient population • MD resident makes EHR referral to health educator at Learning Resource Center • Educator and patient make appt. for DA viewing, decision support; may involve interpreter • Patient surveys indicate high level of satisfaction with DA, decision support • Only a few DAs prescribed in one year after two resident training sessions; why?
Despite challenges, SDM should be part of depression care • Current practice often leads to people not following through with treatment • Adherence to treatment likely to be improved when patient participates in choice of treatment • Better adherence leads to improved outcomes
2011: More interest in SDM than ever • Maine, 2009 • Act to mandate SDM for certain conditions covered by public payers; became Resolve to study • Affordable Care Act, 2010 • $ to develop standards, certification for decision aids • $ to establish SDM Resource Centers • $ to providers for implementation • AMA report on SDM, 2010 • Encourages physicians to adopt SDM processes, but opposes payer mandates, cautioning against cost reduction as primary goal (though not yet proven to save $$)
SDM at MaineHealth: 2012 and beyond • SDM role in strategic initiatives • Role in targeted health improvement goals: chronic conditions, end of life care, colorectal CA screening • Patient-centered care: Patient-Centered Medical Home, Accountable Care • Above all, the right thing to do
Questions/discussion Ruby Spicer, RN, MPH spicer2@mainehealth.org Many thanks to: Neil Korsen, MD, MS Kathleen Fairfield, MD, DrPH Foundation for Informed Medical Decision Making