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Advocacy Strategies: Empowering Change for People Living with HIV/AIDS

Learn how to advocate effectively for social and political change in the realm of HIV/AIDS, communicate needs, and influence public policy decisions. Discover advocacy strategies like letter writing campaigns, forming coalitions, and utilizing social media. Explore AHF's advocacy efforts and understand the importance of ADAP in providing life-saving medications to those in need.

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Advocacy Strategies: Empowering Change for People Living with HIV/AIDS

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  1. AHF Advocacy

  2. AGENDA INTRODUCTIONS ADVOCACY • Definition • Strategies • AHF Advocacy ADAP • What is ADAP? • Current ADAP Crisis MEDIA FORMULA

  3. ADVOCACY

  4. What is Advocacy ? • Communicating needs and voicing them to people who can help. • Aimed at influencing public policy and decisions. • In the case of people living with HIV and AIDS; advocacy is a tool for social and political change, to improve the quality of life for those infected and affected by the epidemic.

  5. Advocacy Strategies • Letter Writing Campaign • Make phone calls • Talk to others • Banners • Legislative Visits • Form coalitions • Protest • Social Media • Be active

  6. AHF Advocacy Efforts • Legislation • MEDI-CAL (MEDICAID) to cover hospice care for people dying of AIDS (1989) • Insurance companies covering HIV testing (2008) • Engaging Elected Officials • Senator Nelson of Florida • Speaker Pelosi • Reduced Drug Pricing • Merck – Isentress • BMS – Reyataz • Boehringer Ingelheim - WelVista

  7. AHF Advocacy

  8. AHF Advocacy

  9. AHF Advocacy

  10. AHF Advocacy

  11. AHF Advocacy

  12. AHF Advocacy

  13. AHF Advocacy

  14. AHF Advocacy

  15. ADAP

  16. What is ADAP? • AIDS Drug Assistance Program • It provides life saving medications to low-income, uninsured, & under-insured individuals living with HIV • It’s a federal match program, to which both state and federal governments contribute • It is the payer of last resort for people with no other resources to pay for their medications

  17. ADAP Funding ** Taken from NASTAD Presentation at USCA 2010

  18. Why are state ADAP’s in Crisis? Economic Downturn has created budget deficits @ state level need to cut spending More expensive program: Over the last 10 years the price of HIV meds have increased More need: Higher unemployment rate + uninsured people more people are eligible for ADAP ADAP CRISIS

  19. Advocacy Calculus • Identify & Understand The Issue • Identify the Players – Who is your target? • What is your “ask”? – Be Specific

  20. Media Formula • Press Advisory • 2 weeks, 2 days, Day of • Press Statement • 3 Speakers, 10 Words • Press Release • Day Before, Send and Call *Press Kit (Hard Copies) to Reporters

  21. Why you? • We are in this together • Its your right • Its your life and your experience • If not now…when? • Accountability

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