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Region 6 Meeting

Region 6 Meeting. Susan Orloff, MD Regional Councillor. Meeting Agenda. Update from OPTN/UNOS leadership Regional Discussion Session Tools You Can Use – UNOS Data Services Portal Review and discuss 3 public comment proposals

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Region 6 Meeting

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  1. Region 6 Meeting Susan Orloff, MD Regional Councillor

  2. Meeting Agenda • Update from OPTN/UNOS leadership • Regional Discussion Session • Tools You Can Use – UNOS Data Services Portal • Review and discuss 3 public comment proposals • Updates on committee activities: Liver, Membership and Professional Standards, Thoracic, Patient Affairs/Transplant Coordinators Committees

  3. Spring 2019 Regional Meeting Date • Spring 2019 public comment: January 22 – March 22, 2019 • proposals will go to the Board for review in June • Mark your calendar! Spring region 6 meeting: • Friday, March 15, 2019 in Spokane, WA

  4. Region 6 Meeting Attendance

  5. Regional Business • As councillor, my role is to: • Oversee regional operations • Serve as the region’s representative to the OPTN/UNOS Board of Directors • Share the region’s comments on public comment proposals • Act in the best interest of the OPTN and UNOS • To best represent the region, I need to hear from you • Welcome members of the Board of Directors • Warm welcome to new attendees at this meeting!

  6. OPTN/UNOS Committee Nominations • Early September: call for nominations distributed for committee member openings in July 2019 • Nominations accepted for all committee openings: regional representatives, at-large members • Regional representatives: additional responsibility of serving as a liaison between the committee and the region • presenting committee’s work at regional meetings • representing the region’s comments at committee meetings

  7. Committee Nominations: Regional Reps Deadline to submit bio forms for regional representative vacancies is October 19 • Regional Nominating Committees meet in November • Select primary and secondary recommendations Considerations: • Professional experience • Committee needs for subject-specific expertise • Ability to represent regional and national perspectives • Diversity in profession, gender, and race • Compliance with NOTA and Final Rule composition requirements • Past regional engagement • Geographic balance in region

  8. Region 6 Vacancies on Committees (terms begin July 1) • Ethics Committee • Patient Affairs Committee • Histocompatibility Committee • OPO Committee • Minority Affairs Committee • Liver and Intestinal Organ Transplantation Committee • Kidney Transplantation Committee

  9. What are we here to do today? • Primary purpose: gather feedback from everyone, which requires your participation! We want you to… • Ask questions • Share your comments • Vote (regional voting members) • Network with colleagues and catch up • Share information and learn from one another

  10. Polling • Polling – uses Poll Everywhere (text message based) • Provides helpful feedback from attendees about the meeting and UNOS • All attendees can participate

  11. Polling – Audience Feedback 22333 22333 Step 1: Step 2: unos D

  12. Test polling question As of June 2018, organs were recovered from over 8,000 donors and a total of 17,935 organ transplants were performed A: True: Yay, that’s awesome! B: True: Yep, great work!

  13. Polling Question What was the primary way you prepared to discuss the proposals on the agenda? A) Listened to a webinar (live or recorded) B) Read public comment proposal(s)/reviewed presentations online C) Discussed with my colleagues D) Waited to hear the presentations today

  14. Polling Question How familiar are you with the process UNOS uses for creating or changing OPTN policies? A) Familiar B) Somewhat familiar C) Not sure

  15. How are policies developed?

  16. How will we provide feedback? • Thorough discussion on all proposals • Answer specific questions the committee wants us to consider • Talk about merits of the proposals • Suggest improvements

  17. Regional Sentiment • Voting is another form of expressing your viewpoint about a proposal, it helps us quantify the feedback • We don’t follow a specific order for voting • Vote on the proposal as is; • Vote on the proposal as is and suggest changes; • Identify changes and then vote • Important that you understand how to express your opinion and what we are voting on vs. following a specific order • Comments and votes are our best effort to communicate regional sentiment

  18. Public Comment Opportunities • Contact Regional Representatives • List is located in the meeting booklet and on Transplant Pro: select the community tab, and then “regions” • Submit public comment online • OPTN website: http://optn.transplant.hrsa.gov/governance/public-comment/ • Public comment closes October 3

  19. What is new today?Electronic Voting • Voting reps received instructions at the registration desk • Goal: Better understanding of perspectives in the regional vote

  20. What’s new today?Enhanced Voting Scale

  21. Voting Reps – Let’s Practice! • Follow instructions provided at registration • Raise your hand if you need assistance • Voting – uses Turning Point (web-based) • Collects regional vote on public comment proposals • Only used by voting reps • Test question for voting members

  22. Regional Meeting Agenda: Non-Discussion • Includes proposals anticipated to be: • less controversial, • minimal impact on the transplant community, and/or • represent a clerical change to clarify policy or remain current with clinical practice • Region was offered an opportunity to request that a proposal(s) be placed on the discussion agenda • Proposals will be voted on today, but not presented or discussed • Proposals presented and discussed during national webinars

  23. Non-Discussion Proposals: VoteYou have the option to abstain from voting if you haven’t reviewed the proposals • Change to Hospital-Based OPO Voting Privileges (Membership & Professional Standards Committee) • Changes to Islet Bylaws (Pancreas Committee) • Guidance on Pediatric Transplant Recipient Transition and Transfer (Pediatric Committee)

  24. Regional Meeting Materials – online! • Today’s presentations are posted on Transplant Pro • Make sure to review the non-discussion proposals and committee updates not presented today • Minority Affairs, OPO, TCC, Pediatric, Transplant Administrators, VCA • Regional meeting materials are also posted on Transplant Pro

  25. Framing the Day • We want feedback from as many attendees as possible • To manage the discussion on each proposal, please limit your comments to new comments, points that haven’t been raised • To be sure your comments and questions are heard, please use microphones

  26. Questions?

  27. Polling question (after lunch) In the past 12 months, how many of the following activities have you participated in? Listened to a public comment webinar, submitted a public comment, served on a committee/board, accessed educational training from UNOS Connect, contacted UNOS staff, accessed OPTN/UNOS resources A) 0 activities B) 1-2 activitiesC) 3-4 activities D) All

  28. Polling Question (after lunch) What is the primary way you communicate your opinion on proposed changes to OPTN policy? A) Speak up/vote at a regional meeting B) Submit public comment online C) Comment during a webinar D) Participate on an OPTN/UNOS Committee or Board E) Not planning to comment on the proposed changes

  29. Polling Question Do you believe sharing your opinion influences changes to public comment proposals? • Yes • no

  30. Polling Question After attending today’s Regional Meeting, do you plan to submit a public comment on the OPTN website? • Yes • No

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