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Rationalizing the New Healthcare Paradigm. Scientific Agenda vs. Patient Imperatives. Research Performance Measurement. Are we winning the war against Pca: How do we know How do we measure Black Population: Disproportionate negative impact Greatest short term need
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Rationalizing the New Healthcare Paradigm Scientific Agenda vs. Patient Imperatives
Research Performance Measurement • Are we winning the war against Pca: • How do we know • How do we measure • Black Population: • Disproportionate negative impact • Greatest short term need • What is the “low hanging fruit”: • Education • Access • Early Detection • Comparative funding: • Parity among cancers
Question #1 • Will access to care solve the issue of racial health disparity
Pathways to Cancer • Awareness • Access • Environment • Lifestyle • Culture • Genetics • Every cancer is different
Early Disease Detection • U.S. vs European conflict on screening • No U.S. consensus • Lack of “Risk” determination • Government agency imbalances • Focus: • Promote Wellness • Treat Illness
Primary Care Impact • Decline in doctors entering into Primary Care Medicine • Resistance to greater use of nurse practitioners • Continuing shortage of nurses • Closing of ER’s • Resistance to “Convenient Care” clinics
Complicating the Issue • Women vs. Men • Comparable incidence and mortality • Research funds - 3X for breast cancer • Public health staffing - inconsistent • Government commitment - no agencies • Media focus - inordinately female focus • Men don’t communicate
Question #2 • Does your doctor provide you with information on your risk of your cancer progressing • Yes • No • I don’t ask because I fear the answer • I don’t think my doctor can give me the answer
Question#3 • Blacks don’t participate in clinical trials because: • Their insurance won’t pay for it • They don’t have insurance • Their doctors won’t be able to provide care • They don’t want to be “guinea pigs” • Clinical trials don’t work • There is not enough information on trials
Why Participate • Health Disparities • Different drug reactions • First Benefit from a New Therapy • Opportunity for treatment years before • Best Standard of Care • Regular health testing • Current approved standard plus new protocol • Protecting the Future
Question #4 • What would cause you to support more funding for prostate cancer research: • Information from my doctor • Information from TV, newspapers • Results of current research studies • Patient advocacy group information • Change in government policies • Patient success stories
Research Accountability • ImpactIMMEDIATE: • What are our Tax Dollars Buying • Communicate: • What does research mean to the patient • Eliminate redundancy: • Support creativity outside of established centers • Building infrastructure and intellectual Capital
Expectations • Survivorship: • What is being done to extend my life NOW • Focus: • On the patient, not the system • Results: • Need balance between the future and present • Think Globally: • Utilize data and results from the rest of the world
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