Region 9 Fall Regional Meeting

1. Region 9Fall Regional Meeting October 1, 2014 Albany, NY Betsy Walsh, J.D. Vice President

2. OPTN and UNOS Strategic Planning • Updating 2012 Strategic plan • Now planning for 2015-2018

3. OPTN/UNOS 2012 Strategic Goals • Increase the number of transplants • Increase access to transplants • Improve survival for patients post-transplant • Promote transplant patient safety • Promote living donor safety • Promote the efficient management of the OPTN

4. 8 Survey Responses

5. Top 3 Strategic Goals Identified Through Survey • Increase the number of transplants • Average - 23% • Range – 10% - 40% • Increase access to transplants • Average – 18% • Range – 10% -25% • Promote transplant patient safety • Average – 17% • Range - 10% - 25%

6. Promote living donor safety • Average – 14% • Range - 10% - 20% • Promote the efficient management of the OPTN • Average – 14% • Range – 5% - 30% • Improve survival for patients with end stage organ failure • Average – 12% • Range – 0% - 25%

7. Finance update • The OPTN contract is funded with OPTN registration fees and federal appropriations • 2015 OPTN budget is $44,523,000. $41,522,000 in OPTN operating funds $ 3,000,000 in federal appropriations $ 1,690,000 to fund OPTN reserves • 2014 OPTN budget was $44,125,000. $41,625,000 in OPTN operating funds $ 2,500,000 in federal appropriations $ 520,000 to fund OPTN reserves

8. 2015 Budgets (OPTN and UNOS) • Based on 54,500 registrations • Registrations for FY 2015 similar to expected levels for FY 2014 • Kidney registrations – approx. 64% of total registrations • Center behavior after implementation of KAS in December 2104 could affect future registrations.

9. Funding and Expenses • Overall OPTN and UNOS fees remain unchanged at $957. • OPTN and UNOS Boards approved reserve fees, goals and procedures at the June 2014 meeting. • Expense levels for OPTN and UNOS FY 2015 budgets are very similar to FY 2014 budgets.

10. IT Update

11. Work Completed Since November 2013 Building credibility by delivering on commitments Released on • Kidney Paired Donation (KPD) • DonorNet Browser Compatibility – iPad and Tablet • Modify requirements for mandatory HTLV-1/2 testing • Reorganize hemodynamic data on adult heart Status 1A form • Kidney Allocation System (KAS) – KIPA Wait Time • Calculated Panel Reactive Antibody (CPRA) • DonorNet Enhancements (Non Policy) • Modify Patient Safety Part 1: safety data entry and categorization December 2013 January 2014 January 2014 February 2014 March 2014 March 2014 April 2014 May 2014

12. Work Completed Since November 2013 Building credibility by delivering on commitments Released on • VCA Program Type Added to Membership Application • KAS – Phase 1 (Three major releases) • SharePoint 2013 Upgrade • UNet Self Service Password Reset • Electronic Tracking and Transport (ETT) Beta • Service titled TransNet • Imports data from DonorNet May 2014 June 2014 June 2014 September 2014 September 2014

13. BOD Projects in Progress • Uniform National Pancreas Allocation • KAS Phase 2 • Revised Lung Allocation Score (LAS) • Pediatric Lung Diagnosis - Other Specify • TIEDI and Office of Management and Budget (OMB) changes • Develop Policy proposals for Living Liver Donor Follow-up • October 2014 • December 2014 • February 2015 • March 2015

14. UNOS Chief Medical Officer David Klassen, MD

15. Upcoming Instructional Events • Pancreas Allocation System • Webinar, October 6, 2014 • System training, October 30, 2014 • Kidney Allocation System • Town Hall Webinar, October 23, 2014 • System Training, November 18, 2014 • Applying the 2013 PHS Guideline for Reducing HIV, HBV, and HCV Transmission • Recording, October 14, 2014

16. Get Involved Access nomination forms for: • OPTN/UNOS Board of Directors • OPTN/UNOS committees Navigate to Members > Get Involved • Click on links to forms (.doc)

17. Region 9Fall Regional Meeting October 1, 2014 Albany, NY Betsy Walsh, J.D. Vice President