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Impact of the Scientist Survivor Program on Cancer Advocacy

Impact of the Scientist Survivor Program on Cancer Advocacy. Jane Perlmutter janep@gemini-grp.com April 15, 2005. Who Am I?. A twenty year breast cancer survivor In 2004 I represented the National Breast Cancer Coalition (NBCC); NBCC focuses on research, access and influence

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Impact of the Scientist Survivor Program on Cancer Advocacy

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  1. Impact of the Scientist Survivor Program on Cancer Advocacy Jane Perlmutter janep@gemini-grp.com April 15, 2005

  2. Who Am I? • A twenty year breast cancer survivor • In 2004 I represented the National Breast Cancer Coalition (NBCC); NBCC focuses on research, access and influence • In 2005 I represent Y-ME National Breast Cancer Organization; Y-ME provides support for those who can’t wait for research • I am an advocate because I am lucky enough to be an advocate

  3. Impact of Scientist Survivor Program • Advocates • Share what you learned with others • Become energized and focused • Partner with other advocates • Keep up some of the contacts you make • Scientists • Are inspired by survivors and reminded of what they are trying to accomplish • We can help them; find out how • They can help us; ask them

  4. AACR Annual Meeting • Largest cancer meeting • Covers full range of cancer research • Bench to Bed • ~ 30% of presentations are translational or clinical • Covers all types of cancer

  5. Plenary Session Award Lectures Forums Symposia Mini-symposia New Concepts in Organ Site Research Late-Breaking Research Sessions Roundtable Sessions Meet-the-Expert Sunrise Sessions Poster Session Scientist—Survivor Formal Sessions Scientist—Survivor Special Interest Sessions Scientist—Survivor AdHoc Sessions Types of Sessions More Formal Less Formal Try them all!

  6. A Few Warnings • The meetings can be overwhelming • The days can be exhausting Pace Yourself

  7. AACR Meeting Suggestions • Try out formal and informal formats • Try out early morning and late evening sessions • Look for a few “big themes” • Hear a few “star scientists” • Chat up some beginning researchers (perhaps at the poster sessions) • Learn something about a new technology

  8. Scientist Survivor Opportunities • Ask your mentor • Ask other mentors • Use Room 202 to rejuvenate yourself • Attend some of the special interest sessions • Network with other advocates

  9. Some Statistics • Currently there are about 8.9 million cancer survivors in US (>2m breast cancer survivors) • This number will continue to increase: • Growing and aging population • Earlier detection • Better treatment

  10. Survivor Participants Strong International Representation Strong Breast Cancer Representation

  11. Breast Cancer • More than 35% of participants in the Scientist—Survivor program have been affected by BC • Almost 25% of US cancer survivors had BC • Less than 20% newly diagnosed with cancer in 2005 will have BC • Less than 10% of cancer deaths in 2005 will be due to BC • Five year survival for BC in the US is about 88% vs. 64% for all cancers

  12. Some Thoughts Especially For Breast Cancer Advocates • We are lucky! • We have a special responsibility • Learn about common and special issues of other advocates • Partner among ourselves, and with all advocates

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