Intermediate Injury Prevention Course August 23-26, 2011 Billings, MT

1. Intermediate Injury Prevention CourseAugust 23-26, 2011Billings, MT Data Collection Planning

2. Data Collection PlanningSession Objectives • Describe the data collection planning process. • Describe how HIPAA affects your data collection efforts.

3. Data Collection Buzz Group Take 5 minutes to discuss these questions with the person next to you. • Have you collected data in the past? • What type of data have you collected? • Did you have any problems/success in your data collection efforts? • What would you like to learn about data collection during this session?

4. Data Collection Planning A systematic method of collecting information to understand truths and reality about a topic in your community. Truth vs. Perception

5. Elder Fall Prevention What are some of the contributing factors that cause Elder falls? Data Collection PlanningIdentify a Specific Question

6. Data Collection PlanningAnticipate Data Needs • Has someone else already asked this question? • What information do you need to answer the question? • Where do you find the information? • Do you have access to this information? • Do you need clearance/permission to gather this information?

7. Record Abstraction Surveys Self-administered Mailed In-person Personal Interviews In-person Telephone Focus Groups Data Collection PlanningData Collection Methods Source: Dr. Runyan, UNC School of Public Health.

8. Characteristics ofGood Survey Questions • Specific, clear, and to the point • As simple as possible, using commonly understood words or terms • Avoid subjective terms (good, bad) Injury Surveillance: A 10-Step Plan

9. Characteristics ofGood Survey Questions • Measurable? Quantitative vs. Qualitative • Provide the information you want/need Injury Surveillance: A 10-Step Plan

10. Data Collection PlanningInstrument Design • Open-ended vs. close-ended • Double-barreled • Sensitive questions • Recall • Length/duration • Pre-test, pre-test, pre-test Source: Dr. Runyan, UNC School of Public Health.

11. Data Collection PlanningOpen-Ended vs. Close-Ended Where does your child usually ride when traveling in the car? • When traveling in the car, does your child usually ride: • In the front seat • In the back seat • On the roof rack Source: Dr. Runyan, UNC School of Public Health.

12. Data Collection PlanningDouble-Barreled Does your child usually sit in the back seat and use a car seat? 1=Yes 2=No Does your child ride in the back seat? 1=Yes 2=No Does your child usually ride in a car seat? 1=Yes 2=No Source: Dr. Runyan, UNC School of Public Health.

13. Data Collection PlanningSensitive Questions How often do you carry a concealed weapon? 1 = Frequently 4 = Never 2 = Occasionally 5 = Don’t know 3 = Rarely 6 = Refuse Some people carry concealed weapons all the time, others do it less often. How often would you say that you carry a concealed weapon? Source: Dr. Runyan, UNC School of Public Health.

14. Data Collection PlanningRecall How many times did you wear your bicycle helmet last year? How many times did you wear your bicycle helmet last year? Would you say it was: 1 = Every time I go out 4 = Never 2 = Once in a while 8 = Don’t know 3 = Rarely 9 = Refuse Source: Dr. Runyan, UNC School of Public Health.

15. Data Collection PlanningLength/Duration • Keep it simple!!! • Only ask the questions for which you need data and you can analyze • Be respectful of people’s time Source: Dr. Runyan, UNC School of Public Health.

16. Data Collection PlanningPre-testing • How is pre-testing done? • Can you describe some of the factors you want to investigate during pre-testing?

17. Data Collection PlanningPlanning Summary Systematic, planned approach: • Identify the injury topic • Narrow your focus • Identify a specific question • Anticipate your data needs • Develop and pre-test your instrument

18. Data Collection Planning Confidentiality What are HIPAA and IRBs all about? How does HIPAA affect your data collection efforts?

19. Data Collection PlanningHIPAA of 1996 • HIPPA privacy rule provides first national standards for protecting the privacy of health information. • Provides protection for the privacy of certain individually identifiable health data (PHI). • Regulates how certain entities (Covered Entities) use and disclose PHI. Source: CDC, MMWR, May 2, 2003 / 52(S-1);1-12.

20. Data Collection PlanningHIPAA of 1996 “Privacy rule expressly permits disclosures without individual authorization to public health authorities authorized by law to collect or receive the information for the purpose of preventing or controlling disease, injury, or disability, including by not limited to public health surveillance, investigation, and intervention”. Source: CDC, MMWR, May 2, 2003 / 52(S-1);1-12.

21. Data Collection PlanningHIPAA of 1996 Covered Entities include: • Public and private health plans (HMOs, Medicare, Medicaid) • Health Care Providers (physicians, hospitals, clinics) • Public Health Authorities include: • Federal, State, and Tribal public health agencies Source: CDC, MMWR, May 2, 2003 / 52(S-1);1-12.

22. Data Collection Planning Confidentiality Resources CDC, MMWR, May 2, 2003 / 52(S-1);1-12. Oversight and enforcement responsibilities with HHS Office for Civil Rights: www.hhs.gov/ocr/hipaa IHS HIPAA Homepage: www.ihs.gov/AdminMngrResources/HIPAA/index.cfm CITI Course in The Protection of Human Research Subjects: www.citiprogram.org

23. DATA COLLECTION LAB EXERCISES • 4-5 Groups w/facilitator • 2 Exercises: • Assessing Data Systems • Developing a Case Definition • 30 minutes each + debriefing discussion

24. Exercise 1:Data Source Strengths & Weaknesses • Brief scenario regarding potential availability of state IP data • Develop assessment questions re: strengths and weaknesses of the data • Debrief to include additional questions to consider and sample data request letters • Use worksheet

25. Exercise 2:Injury Case Definition • Brief scenario (provided or from a group member) • Drafts case definition • Discussion of characteristics of the developed case definition; strengths; limitations • Use worksheet