Mental Health Service User Movement

1. Reg McKenna NEST Steve Kent .. SUNRISE Caroline Robinson Mental Health Joint Commissioning

2. (needs to be completed) Reg McKenna, Steve Kent, Caroline Robinson. June 08 2

3. Background: Service user protests, 200 years – mainly individuals 1970’s – Mental Patients Union – Paddington Day Clinic Campaign Against Psychiatric Oppression; Protection of the Rights of Mental Patients; Survivors Speak Out; UKAN; Hearing Voices Network …… 1985 < 12 groups by 2005 > 500 Reg McKenna, Steve Kent, Caroline Robinson. June 08 3

4. Policy & practice informed & influenced by direct and relevant experience of service users across diverse communities; Broad level of involvement with more people who have had experience of MH services and those who may require MH services in the future Service redesign influenced by service user/carer led research Reg McKenna, Steve Kent, Caroline Robinson. June 08 4

5. Stronger links with local community groups to promote mental health and social inclusion Quality monitoring of contracts based on direct experience of service Structures in place to facilitate service user/carer involvement Creative and innovative engagement which is a positive and enjoyable experience for service users/carers and strengthens self-esteem Reg McKenna, Steve Kent, Caroline Robinson. June 08 5

6. Providers are responsible for service user/carer involvement as a ‘must do’; good practice Strengthen involvement at all levels of commissioning – identifying local needs; resource allocation; monitoring and evaluation NEST + SUNRISE: c. £230,000 SE-SURG; LINKS; patient forums; special interest groups (ie Personality Disorders, BME etc) Reg McKenna, Steve Kent, Caroline Robinson. June 08 6

7. KEY AREAS: Research and redesign of services – commissioning specific studies. Monitoring and evaluation – contract monitoring Empowerment – self help and mutual aid Training - for service user/carer involvement Networks – forums = LINKs Reg McKenna, Steve Kent, Caroline Robinson. June 08 7

8. Workshop July 07 Commissioning intentions - proposals Consultation on until 14 December 07 Revised report Dec/Jan 08 Workshop Jan 08 Approvals across ECC and PCTs Service specification June/July 08 new contract in place late 08 early 09 Reg McKenna, Steve Kent, Caroline Robinson. June 08 8

9. Joint planning with NEST and SUNRISE, ECC and PCTs across North and South Essex Enthusiasm to strengthen involvement in commissioning LINKs development – good timing Reg McKenna, Steve Kent, Caroline Robinson. June 08 9

10. Forums debate Procurement processes - delayed progress Defining outcomes for new contract Workshops could have been more ‘innovative’ Focussing commissioners on new challenges and changing the way we work. Reg McKenna, Steve Kent, Caroline Robinson. June 08 10

11. The Sunrise view Is this the end? What are our options? How can we survive as a Service User Led Group?

12. Group Meeting 50+ Engage Empower Positive

13. Service User Leadership Training Self- Esteem & Confidence Public, Speaking, Presentations & Peer to Peer Feedback Health & Wellbeing Take A Stand – Stigma & Discrimination &The Media & Internalised Discrimination Quality Assurance – Doing Monitoring & Evaluation Service User Involvement “Visioning Workshops”

14. Forums & Engage with Membership Communication Forward Movement – Positive & Important

15. Service User Led Involve Service Users: Research & re-design of Services Monitor & Evaluation Self Help, Mutual Aid & Peer Support Training Networking ??-LINks- ??

16. Questions What could have been done better? What have we learned from this? How could it have been improved?

18. The NEST view The ‘priorities for development and change’ if implemented well, will promote a significant enhancement in involvement activity will provide the basis for better service delivery and therefore improved quality of life outcomes for service users and carers The introduction of LINks will complement the new structure. HOWEVER!

19. The beginning of a new era “shifting the balance of power to enable service users and carers to significantly influence change in commissioning services”

21. "World Class" Mental Health Commissioning A Perspective from the NHS Confederation Mental Health network and PCT network These Perspectives were developed in a joint workshop with members from the Mental Health network and PCT network Specifically the workshop focused on the system conditions that need to emerge if "World Class" Mental Health Commissioning is to flourish

22. Consumer Engagement Condition 8 - Invest in the skills and competencies required to deliver effective service user engagement. Recommendation 8 - Mental Health services have a positive history of working in partnership with service users. This track record provides the opportunity to take service user engagement on to a further level and associate commissioners with a commitment to engagement. We recommend a joint approach to service user engagement with the development of service user engagement programs where Commissioners and service users learn together (these programs could include modules on self directed care). Similar programs (some university based) already exist in service redesign where clinical staff and service users learn techniques to improve service delivery together.

27. Contact details