Building Medical Homes That Work

1. Building Medical Homes That Work

2. Presentation adapted by Family Voices from materials developed by Michael D. Warren, MD MPH FAAP Director, Title V/Maternal & Child Health, Tennessee Department of Health

3. Materials developed by the Tennessee Disability Coalition with funding from: -The US Department of Human Services’ Health Resources and Services Administration, Maternal and Child Health Bureau (Project # H84MC00004-09-00)--The Tennessee Affordable Care Act Family-to-Family Health Information Center. -The Tennessee Disability Coalition

4. In this Presentation you will learn about... • The Medical Home Approach • Families juggle a lot at once • Accessible Care • Compassionate Care • Comprehensive Care • Coordinated Care • Culturally Effective Care • Family-Centered Care • Elements of Family-Centered Care • Engaging Families and building leadership skills

5. The Medical Home Approach • The term “Medical Home” was first used in the 1960’s • Literally meant a central place to store records of children with special health care needs • Over time, the definition has expanded to describe an approach to care

6. The Medical Home Approach The Medical Home is not: • One particular place • One particular provider • One particular building

7. The Medical Home Approach The Medical Home is really an approach to caring for children and families It is a system of care that includes: • Children and families • Primary Care providers • Subspecialty providers • Community resource providers

8. Families Juggle a lot at Once Big Picture: Child and Family Health Insurance Education Family/Marriage Medical Care Work Housing Child Care

9. Families Juggling a lot at Once Me Medical Concerns: Child and Family Health Insurance/ Medical Care Education Family/Marriage Specialist PCP Community Resources Child Care Medical Home

10. The Medical Home Approach Care that is: • Accessible • Compassionate • Comprehensive • Continuous • Coordinated • Culturally Effective • Family-Centered

11. Accessible Care • Care provided in the child’s community • All insurance types accepted • Practice physically accessible and meets the Americans with Disabilities Act requirements

12. Compassionate Care • Provider expresses concern for well-being of child and family • Provider tries to understand and empathize with feelings and perspectives of family

13. Comprehensive Care • Provider well-trained to manage child’s care • Preventive, primary, and tertiary care needs are addressed • Provider is accessible 24 hours a day, 7 days a week, 52 weeks a year • Provider shares information about available community resources

14. Coordinated Care • Provider and family develop plan that is shared with others involved in care of patient • Care among multiple providers is coordinated • Central record of care is available • When referral is made, primary care provider communicates with specialist

15. Culturally Effective Care • Child and family’s background, values, beliefs are recognized, valued, respected, and incorporated into care plan • Provider makes every effort to make sure that child and family understand the care plan

16. Family-Centered Care • Provider knows the child and family well • Family and provider share responsibility for well-being of child • Family is recognized as principal caregiver and expert in child’s care

17. Elements of Family-Centered Care • Respecting the pivotal role of the family as caregiver, advocate, decision maker. • The role of professionals is to support families in their care giving roles. • Based on family’s values, preferences, priorities, and needs.

18. Elements of Family-Centered Care • The family is the constant in a child’s life, while service systems and support personnel within those systems fluctuate. • Parent/professional collaboration at all levels of hospital, home, and community care: • Program development, implementation, evaluation, and evolution; and • Policy formation • Care of an individual child

19. Elements of Family-Centered Care • Encouraging and facilitating family-to-family support and networking. • Ensuring that service and support systems are: • flexible • accessible • comprehensive

20. Elements of Family-Centered Care Appreciating families as families and children as children, recognizing that they possess a wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support.

21. Engaging Families and Building Leadership Skills • Ask families their opinion. • Families with experience can mentor newer families. • Share leadership opportunities for families: • Hospital parent advisory councils • CSS (Children Special Services) advisory council • Family Support Councils • Volunteer Advocacy Project • Sponsor and/or share training opportunities.

22. Specialist Medical Care PCP School Child Care Family/Marriage Work The Medical Home Approach

23. Belinda Hotchkiss Family Voices Director Tennessee Disability Coalition 615.383.9442 belinda_h@tndisability.org www.tndisability.org Toll Free: 1.888.643.7811

24. Resources for Families Medical Home Toolkit: Tools for providers and families to promote coordinated care for children in Tennessee http://www.tn.gov/goccc/initiatives/medicalhome/index.html National Center for Medical Home Implementation: This resource is for health professionals, families, and anyone interested in creating a medical home for all children and youth. http://www.medicalhomeinfo.org/ Health Reform Hit Main Street (Video on Affordable Care Act) : Confused about how the new health reform law really works? This short, animated movie explains the problems with the current health care system, the changes that are happening now, and the big changes coming in 2014. http://www.youtube.com/watch?v=vmdbllWOOzs

25. Resources for Families ACA Homepage: Take health care into your own hands http://www.healthcare.gov/ FamiliesUSA: The Voice for Health Care Consumers Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. http://www.familiesusa.org/health-reform-central