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Getting it Right for Every Child with Complex and Exceptional Healthcare Needs

Getting it Right for Every Child with Complex and Exceptional Healthcare Needs Dawn Moss (Lead Clinician, CEN NMCN). NMCN CEN background and context. Previous work by Scottish Complex Needs Group and Dr Patricia Jackson (CEN Lead Clinician 2009-2011) Policy documents

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Getting it Right for Every Child with Complex and Exceptional Healthcare Needs

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  1. Getting it Right for Every Child with Complex and Exceptional Healthcare Needs Dawn Moss (Lead Clinician, CEN NMCN)

  2. NMCN CEN background and context Previous work by Scottish Complex Needs Group and Dr Patricia Jackson (CEN Lead Clinician 2009-2011) Policy documents For Scotland’s Children (2001) Building a Health Service Fit for the Future (2005) Delivering a Healthy Future (2007) Better Health Better Care National Delivery Plan (2009) Getting it right for every child (GIRFEC, 2008)

  3. Getting it Right for Every Child core message: “Everyone has a responsibility to do the right thing for each child and we must all work towards a unified approach, with less bureaucracy and more freedom to get on and respond to children. This will mean earlier help and the child getting the right help at the right time packaged for their particular needs.”

  4. Aims of the NMCN CEN • Ensure a comprehensive mapping of children within Scotland and share data to support an evidence based approach to service redesign • Involve children, young people and families in discussions about service improvements • Be a focal point for health professionals, social work and education staff working with children with complex needs to share good practice • Identify workforce needs - training and capacity www.cen.scot.nhs.uk

  5. Working with stakeholders across boundaries • By March 2012 over 1200 people involved (48 parents) • In 2009 network contacts were mainly community paediatricians and children’s community nurses • In 2011/2012 strong increase in network contacts in acute, NHS24, SAS • Around 500 unique visitors to the CEN website each month

  6. Service users Education and training Pathway of care Steering group Data and Audit NMCN CEN Groups Please contact us if you are interested in joining a working group: www.cen.scot.nhs.uk

  7. Children with Exceptional Healthcare Needs Group defined by the complexity of their healthcare, rather than their diagnostic label www.cen.scot.nhs.uk

  8. Data collection and Audit • Feb 2012: over 80% of the estimated 393 children in Scotland who meet the CEN assessment criteria were recorded on SNS or local databases • Hospital admission audit performed by CEN and ISD on high number of repeated unplanned hospital admissions

  9. Pathway of care for Children with Exceptional Healthcare Needs • 160 good practice documents and guidelines on 16 topics • Viewed/downloaded by more than 300 people each month • Retrospective audit

  10. A Parent’s View

  11. Skills – working across boundaries

  12. Skills - core components of Getting it right for every child • Co-operation, joint working and communication • A Lead Professional to co-ordinate • Maximising the skilled workforce within universal services • Skills of advocacy, negotiation, leadership, • The capacity to share demographic, assessment, and planning information

  13. Training and Education NMCN CEN Service users suggestions for improvement and identified workforce training needs resulted in two DVDs; patient leaflet; 15 communication workshops for over 300 professionals www.cen.scot.nhs.uk

  14. How Do You Want Me To Talk To You • Recognising the challenges in communicating with children with exceptional healthcare needs • Train the Trainers • Jan – Mar 2012 10 Local workshops across Scotland • Over 300 professionals have completed training • April/May – 3 additional dates

  15. Aims of the Workshop • Increase awareness of participants own feelings in relation to working with children and young people who are non-verbal • Reflect on those feelings and their implications for practice • Increase confidence of participants to engage with children and young people with exceptional healthcare needs and their families • Resources available from www.cen.scot.nhs.uk

  16. Next educational projectEarly Support and Early Expectations • ‘Words matter’ – listening to parents experiences • Managing expectations, transition from hospital to community – working across boundaries • Child getting the right help at the right time packaged for their particular needs (GIRFEC)

  17. CEN conference – Edinburgh Thursday 27 September 2012 ‘Early Support for Families and Children with Exceptional Healthcare Needs’ Thank you! www.cen.scot.nhs.uk

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