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The NLH Skin Disorders Specialist Library and DUETs

The NLH Skin Disorders Specialist Library and DUETs. Douglas Grindlay & Hywel Williams University of Nottingham. National Library for Health. The NLH Skin Disorders Specialist Library. “One-stop” shop for quality, evidence-based information on skin conditions and treatment

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The NLH Skin Disorders Specialist Library and DUETs

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  1. The NLH Skin Disorders Specialist Library and DUETs Douglas Grindlay & Hywel Williams University of Nottingham National Library for Health

  2. The NLH Skin Disorders Specialist Library • “One-stop” shop for quality, evidence-based information on skin conditions and treatment • Launched 8th March 2005 • Based at Centre of Evidence Based Dermatology, University of Nottingham

  3. The Centre of Evidence Based Dermatology

  4. The Skin Disorders Specialist Library - Scope • All aspects of diagnosis, treatment, management and prevention of skin diseases • Includes psychological and social impact • Also: wounds, leg & pressure ulcers, disfigurement, plastic surgery, sexually transmitted diseases

  5. Our community - Stakeholders Secondary care clinicians - BAD • Health Informatics Committee • Website Committee • Trainee Committee • BAD Diagnostic Index • Guidelines & PILs • Paediatric dermatology

  6. Our community - Stakeholders Secondary care clinicians (cont.) • British Association for Sexual Health and HIV • British Association of Plastic, Reconstructive and Aesthetic Surgeons • Immunology

  7. Our community - Stakeholders General Practitioners • Primary Care Dermatology Society (mainly GPsWSI) • Non-specialist GPs

  8. Our community - Stakeholders Secondary and primary care nurses • British Dermatological Nursing Group • RCN Dermatology Nursing Forum Other health professionals • Pharmacists

  9. Our community - Stakeholders Information specialists • Health librarians • Health informatics experts • Other health databases - TRIP, INTUTE, NHS Direct Online, NLH Specialist Libraries

  10. Our community - Stakeholders Patient Groups • Skin Care Campaign • National Eczema Society • Psoriasis Association • Acne Support Group • Vitiligo Society • Contact A Family

  11. Our community – Library users • We don’t know exactly who uses the Library, or where (!) • c. 16,000 site visits per month • Nearly 10% of total Specialist Library site visits • Used by patients and also health professionals abroad • Nearly 500 subscribers to e-mail updates

  12. Communication with our community • Stakeholders Group (formal meetings and individual correspondence) • The Library • National Knowledge Weeks • Monthly e-mail updates • Feedback form on home page • Talks and stand at conferences • Articles

  13. Implications for DUETs • NLH Specialist Libraries well placed to communicate with their communities of practice • Centre of potential network for collection of uncertainties and research prioritisation • Key role of Clinical Lead • Great potential for dissemination

  14. The DUETS Skin Module Began work in January 2007 • 1st phase – Uncertainties invited from patient groups • 2nd phase – Uncertainties invited from health professionals • 3rd phase – Uncertainties identified from systematic reviews by Skin Disorders SL team

  15. Uncertainties invited from patient groups • January 2007 – asked National Eczema Society, Psoriasis Association & Acne Support Group for patient questions • Still awaiting response of Psoriasis Association

  16. Uncertainties invited from patient groups (cont.) • Problem – support groups may lack resources to know if questions = true uncertainties • Needs search for systematic reviews by Specialist Library team to check – a lot of work! • Some rejects, e.g. long-term effects of antibiotics for acne

  17. Uncertainties invited from health professionals • BAD asked to collect uncertainties from their guidelines and Committee meetings – still awaiting results • Contributions from individuals invited in National Knowledge Weeks on acne and eczema – no response!

  18. Uncertainties identified from systematic reviews • Currently main focus of work • Tackling one disease at a time to avoid bias in coverage • Started with eczema • Using Cochrane and non-Cochrane reviews • Difficulty in judging uncertainties

  19. Eczema module launched in National Knowledge Week …50 uncertainties identified so far

  20. Link to National Knowledge Weeks • Annual Evidence Updates involve search for systematic reviews – harvest for DUETs • Searches updated annually – update or remove (!) uncertainties as required • Chance to promote DUETs and seek contributions of uncertainties

  21. Conclusions • Systematic coverage of topics • Systematic reviews easiest source for uncertainties • Difficult to get active contributions from individuals & organisations • Danger of Specialist Libraries doing all the work • But: Exciting, potential of DUETs now being realised

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